Cardiologists (sp?) Appointment today...

[CC]

Many of you regulars here know Chris has a heart condition aka Tachycardia (sp?) due to WPW Syndrome. Not a thing to do with DS and totally not something that is on the common list for ones with DS. He was born with it and something he has had to deal with for the last 13 years. We have twice tried to have it corrected but both times were unsuccessful


As much as I love his heart Doc I truly long for the day we can say nice to know you but BYE Chris met this Doc when he was 2 days old and honestly I never ever would think 13 years later we would still be seeing him.

Anywhoo back to the subject, we went for a visit today and being it has been 4 years since they last tried a procedure to correct this, he feels it is time to try again. He says its been 4 years and there have been many advances made since. He also said since Chris is still experiencing rapid heart and on meds it should be re-looked at. The past 2 times we have tried to have it fixed it has been tried at Children's Hospital in NYC. He said we may try it again there or recommend another hospital out of the area. I will know more in either 2 weeks or a month depending cause our Doc is going on vacation in a few weeks. Colin and I have talked bout this much tonight and decided we have to try if there is any chance we can correct this for our guy. Sooo at the moment I am sad to say Pittsburgh is on hold for us Being we own our own company in order to go to Pittsburgh we would have to shut down the company for a few days, which was fine, you are ALL worth shutting down for to meet BUT if we have to take time for this for Chris this summer, which happens to be our busiest time of year I am not sure what is what.

I have hope we will still be able to make Pittsburgh but can not commit at this time. BUT I am sure you all understand what our priorities have to be

I will let you know as soon as I know more and if you wouldn't mind a few good thoughts for Chris that this can once and for all be corrected, OMG what a GREAT thing that would be. Most times this is corrected pretty easy but with my LITTLE CHARACTER, nothing ever seems to go easy

This is long and if you read the whole thing HUGS to you

CC ~

[Becky]

I read the hole thing just to get a hug, lol

Good thoughts going out to Chris that all goes well for him and they can fix the problem

Becky

[Jessie]

Here's to hoping and praying that if you guys do decide to go forward with another procedure that it works this time.

You never know, maybe everything will just fall into place and you guys will still be able to meet us in Pittsburgh!


Jessie

[Mary_L.]

I hope that this time is the charm for Chris. Keep us posted on how things are going.

[Chester]

Hopefully this could be the procedure that will make it possible to say goodbye to the cardiologist! I'm sure it's a big weight on your own heart weighing the risks with the possible outcomes.

Dawn

[momofrussell]

OH gosh I completely understand! Chris' heart is paramount!!!! And the possibility of fixing it? WOW... I pray for you all that this works!!!!

Hugs to you!!!

A.

[andrewsmom]

Yup.....I made it through the whole thing too!!! LOL!

I sure hope this procedure will "fix" all of his problems with his heart. I will be sending good thoughts and prayers your way.

-Trisha

[CC]

THANKS gals, well we just have to wait for our Ped Cardiologist and the surgeon to meet and come up with the plan as to where and when we try again.

When I find out I will let you all know

CC ~

[Cbean]

Hey CC...many prayers will go out from here for Chris. Heck...look what happened to us with just a simple surge of prayers for Em. Did you ever get down to CHOP?

[angela2]

My thoughts and prayers going out to Chris...
I hope they find something that works for him, and can solve the problem.