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Post by Claire on Jan 21, 2005 20:17:27 GMT -5
Adam was born with one of his testiciles too high. well we waited like they told us to do as it sometimes comes down by itself, and they checked it every year. Well this year it has gotten right up to the top. Now they say he will need surgery, and may even have to remove the testical. I heard that it can twisted and go gangrene if not treated. The problem is Adam has had a lot of problems with intubation. The last time he had a reaction to the meds and stopped breathing during a sinple surgery. It ws only dental which should have taken 15 minutes but he ended up in ICU and was in surgery for 2 hours. I am terrified to have him put back to sleep. He also has a thracheal stenosis (narrowing of the thracha) about 50 100% qhich agravates the situation. As any of your boys been threw this and how was the surgery and reccuperation time.
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Post by Becky on Jan 21, 2005 22:52:28 GMT -5
Two years ago Justin went threw this.
They had to go in and tie down both of his testiciles as they were both way up, they coudlnt find the left one so they werent sure he had both,he did.
Justin also has a hard time with be being put under so we thought allot about it, the doc said with them being up so high it make a lot of heat with alot of heat up in that area there is a good change of testiciler cancer so went a ahead and let them do it. The surgery took about 30 minutes and we were home in about 4 hours and Justin was up and walking around the next day, he did look like he had been riding a horse for a week but he did real good.
Feel free to email me
Becky
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Post by Becky on Jan 21, 2005 22:53:21 GMT -5
P.S.
Thank you for letter I recived it today in the mail, loved the photo
Becky
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Post by Deannalee on Jan 21, 2005 23:39:02 GMT -5
Justin just turned 2 and has had bilateral undescended testicles. I found this out last yr when I took him to urology to see about a circumcision. I already knew one was completely undescended, but the other went back up also. They told me to wait on the surgery for his testicles and circ due to his resp issues. I am going to go back in this Spring to see what they say. I also heard the stats about the torsion, the "strangulation", the cancer risks, etc, etc. I am also worried about the anesthesia, too and keep praying those little buggers will drop down and stay put....so far no....I check with each bath. the last simple surgery Justin had left him on the vent for 11 days!!!! I will keep you posted if you keep me posted on your little man. Thanks and take care.
Deanna
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Post by wrblack on Jan 22, 2005 8:58:13 GMT -5
Yep, been there, done that. Charlie had hypospadius, one undescended testis, and one partially descended. Excellent pediatric urologist at CHOP (Children's Hospital of Philadelphia) did hypospadius repair at just over 1 yr old. Let that heal to see if would need any revision; didn't; then did bilateral orchidopexy about 4 months later. Both procedures were day surgeries without any problems. Got his eye checked both times, too. Oh, and ped urologist said Charlie should be able to write his name in the snow like any other little boy.
Now, we're looking into T&A. We'll go back to CHOP. Certainly don't want any problems but want to be somewhere with good PICU just in case.
Always a question of risks and benefits. That's for you to say after getting good advice. I'd think this one would be worth it for Adam.
Good luck,
Bob
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Post by christie on Jan 22, 2005 20:30:05 GMT -5
YUP same here, Christopher had this procedure done when he was 4 and 1/2 / 5 while they were fixing his hernia they took care of this problem also. Honestly for us this was one of the easiest he has been thru. BUT each surgery and each peson is different soooo I can understand your fear. Chris was in and out the same day and did develope a slight fever for a few days but other then that did fine. I wish I could say the same for all the other surgeries he has had   PLEASE let us know when you schedule the surgery, Blessings going out from New Jersey CC ~ |
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Post by coopersmoma on Jan 23, 2005 23:01:13 GMT -5
Cooper had this surgery done in September. His left testicle had not descended and our Dr. told us that the longer it stays up at body temp. the more chances of testicular cancer. He also told us that he may have to remove the testicle. We had this surgery and the circumcision done at the same time. Cooper wound up being in surgery for about 3-4 hours. Our Urologist said due to Cooper being so small, it took him longer. Cooper had no problem with the surgery for the testicle, it was the circ. that was painful. The incision was made at about the bend of the leg. He healed pretty quick from it. Adam will recover fine from the surgery. Now I understand your fear of the anesthesia part. I would be very concerned if he had the problems before and I would make sure that the Anesthesiologist is aware of past complications. Good luck.
Wendey
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Post by Kristen on Jan 24, 2005 13:50:21 GMT -5
Carter had it at 18 months. After that they start to need the hormonal funtion of it, so we decided to stop waiting and do it. Good thing becausae that night he pulled up and stood STRAIGHT up for the first time ever - apparently something was pulling in there. Feel like an ass for not doing it sooner, but who knew? He was in surgery for about an hour and 15 minutes and it was the first time he would lay down in bed with me and take a nap LOL! He was doing better that afternoon and by evening he was well enough that I went to school and left him in his father and grandmother's very capable hands and he was fine. In fact he sat on my mom's lap at dinner and ate two cresent rolls, a huge pile of rice and gravy and drank two milks. Next day it was like nothing happened to him.
Be warned, though, it looks HORRID for a couple days - I was not prepared for that! They cut him on each side at his scrotum and also up at like, his bikini line area, for lack of a better term! Also, use the salve they give you (if they give an antibiotic) or vaseline on a gauze square and stick it on each incision at diaper change time. Carter had a big poop and I was so scared to wipe him there, but you have to get it clean, especially over an incision, KWIM? He didn't act like it hurt, but that's when I came up with the gauze idea. MUCH easier on everyone just to peel that back and hae the mess be gone.
Almost a year later, his scrotal scars are totally invisible and have been for months and his higher ones are almost completely gone. I had to tell the new ped he had the surgery done and she was like, I don't see any scars! Not that it's majorly important, but it's like then you shut the door on it like everything is where it should be and it's over, KWIM?
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Post by Claire on Jan 26, 2005 22:01:21 GMT -5
Thank you so much for all the info. I did read up on it on the NET. But it is always better to hear it from ones that have actually been through it. We are still worried about the intubation problem but glad that the surgery itself is not as dangerous as I though, although every surgery can become serious sometimes. I was surprised how fast they recuperate. That is one good thing. We have an appointment with the Eurologist surgeon on the 5th of Febuary so I will feel a little more informed thanks to you all.
Claire
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