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Post by chasesmom on May 13, 2006 8:20:12 GMT -5
Geez Jeff.....everyone is going to have to say thank you to you now for the great article.... how awful is that? ? LOL, seriously, great article and I am printing it and taking it with me to mtg #2 of Chase's IEP, first mtg was Thursday, tension was so thick you could cut it with a fork. I think before we start the mtg I am going to insist everyone read the whole article, not everything in it pertains to Chase but ALOT of it did, ESPEIALLY the part about him not being able to switch from one task to another easily without getting to finish the first, that is a huge thing at school they fight with Chase about and darn if it isnt in the article!! Susan didnt you have a IEP at school yet, I thought you said it was coming up soon and what did they say about the circle of friends? I am HOPING you got a better response then I did when I brought it up for Chase to have, (no I have not given up yet) and btw guys.......seeing as Jeffy tells it like it is......I am thinking that he would be a great item to have at our IEP's, LOL, especially Chase's, if they have trouble with me, imagine if Jeff and I were there!!!!!!! ;D Double trouble! hugs everyone, Robin PS....CC, Chase doesnt do self talk yet either, he is very very quiet at home as long as things go his way, as a matter of fact, we are having a terrible time getting him to use his words for anything, he is into this whole new grunting when he wants something, which is not going over well wit him or I, me because there is no way in he** I am going to jump for a grutnign kid and he is not taking too well to me saying he has to speak and that I am not his maid. I really really think the LAZY gene is a huge part of the 21 chrom. for him!!!!!!
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Post by hidyperson on May 15, 2006 8:49:28 GMT -5
I'm so glad you all enjoyed it - I found it explained a lot. Frustatingly, I've had to explain this to some of the day program people.... I sure wish I'd known this on day 1. It would have set a differant tone, and made us take/experiance things in differant way. Now, 4 years later, the early impressions are still there, only surface wrapped in this new info. I find it personally interesting how hard it is to rewrite our own personal programing. But what can we do ? We also have a life time of learning how to read others and how to commicate. And with someone who talks a differant talk, it can at times be like someone who always calls 'blue' 'red'. If you're 'on' you get it and adjust for it, but if you're tired and harried... But I think we are too hard on ourselves sometimes. I can't go back in time to see Jeff and Caryl of 2002, but if we could, I think we'd find that we really know what we're doing compared to then. ROBIN - Our roommate is LAZY and she thinks we're hotel staff. She nags us not only about her stuff, but about things like, 'did you make coffee ?' and she doesn't drink coffee, we do - but her groove wants everything as it "should be". Groovin' on a Sunday afternoooon - Jeff
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Post by Jessie on May 15, 2006 10:12:37 GMT -5
Huh, interesting. When I first read this post about Emily I guess I wasn't really focused on the self-talking part, more about Emily not interacting with other people during recess. Now that this thread has progressed into what it has it's made me more aware of the self-talking issue. Jason always does this when he is in his room and I've never given it a second thought. We can't understand what he is saying and I guess I just figured that is his way of getting things out without having to worry about how other people are going to respond to him! He has not ever done this in public, so we'll see if ends up developing that eventually. My boy is a groover too! Robin - Jason also has a little lazy gene within him too I honestly think that when it comes to his speech, it's not only that he started out having difficulty with it which was beyond his control, but he has grown up with people reacting to grunts - DON'T give in to this with the Chaseman!! Jessie
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Post by cindylou on May 17, 2006 15:59:22 GMT -5
I have to respond to the "LAZY" thing-- I've taken to referring to it as efficient and intelligent. --Gets it done (whatever it is, but generally speech wise) in the most efficient way by cutting out all the 'extras' and being very direct. That's much more efficient. --Intelligent--because if Kaylee can get a grown up/another peer or even the dog to do something for her, then we're the puppets and she's pulling the strings. Happens quite a lot. Doesn't that make her smart? ;D ;D IN THE BUSINESS WORLD her job title would be MANAGER or CEO
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Post by laurasnowbird on May 17, 2006 21:10:11 GMT -5
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Post by Emilysmom on May 17, 2006 21:40:58 GMT -5
I just LOVE Disability Solutions!!! That article was very interesting! I'm printing it to take to Em's teachers. THANKS LAURA!
Susan
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Post by momofrussell on May 18, 2006 9:18:55 GMT -5
YES... DISABILITY SOLUTIONS ROCKS!!!
A.
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Post by chasesmom on May 20, 2006 22:44:00 GMT -5
Cindy...Very good point only a CEO would have that kind of power so I guess our kids are darn smart!!!!! Susan.....how did Emily's IEP go? I have been waiting to hear and please please tell me it went wayyyyyyy better then Chase's. We are going to mtg number 3 next Thursday, where they will show us a "part" of a program they are going to invent for Chase and a couple other "UNIQUE" (using the special ed directors term) and so sorry but he is not going to be allowed back in his school, they no longer want him and please feel free to file for a hearing. Oh and btw...so sorry but they dont know what the program will look like before fall so trust them it will be okay and did they forget to mention they also dont know where it will even be held. Oh and lets not forget they are thinking of hiring a few 14 year old kids to be my son's friend!!!!!!!!!!!!!!!!! (am I taking this wrong or was it okay that I was very insulted they want to pay boys to play with my son during lunch break at school? ?) I know I should not be wallowing in self pity for me and Chase but oh man, I am wallowing like a pig in mud, this is so wrong!!!!!!!! And, I just dont know if I have it in me to tear them to pieces right now. Robin
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Post by Alice on May 21, 2006 15:41:21 GMT -5
Hi Susan, I have seen this post for a long time, but sorry did not have time to post or could not post from work. Just want to let you know that I understand Emily very well, because I am in her shoes when I am around people who are native English speakers (you know English is not my first language). I am very shy, because I afraid to make mistakes or so and people will make fun of my English. Hugs to Emily, Alla
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Post by updowns on May 21, 2006 16:51:42 GMT -5
Susan, I am so sorry things are tough for Emily right now, there is nothing I can add to all the great ideas already suggested. Sarah self-talks also, has done for years - she always goes to another room, her room, bathroom, even the hall where she can be alone. If she has been in trouble (which can be quite often ), she "relates" her tale of woe and bad-mouths her cruel parents One curious thing I have noticed only recently (obviously was always apparent but being a bad mommy I didn't notice) - Sarah tends to stammer (really bad at times) when she speaks to anyone, including us (except when she is MAD!) but I have noticed when she self-talks she NEVER stammers! ?? Anyway, sounds like you are getting support and I hope you can sort out something - the circle of friends sounds great. Please keep us posted on how dear Em is doing. Stella
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