Post by shan on May 8, 2006 9:16:53 GMT -5
Hi Everyone!
First I want to THANK YOU THANK YOU THANK YOU for all the thoughts and prayers for Ava... All of them helped so much!
Ava is a trooper - she is so unbelievable - Not only was the surgery a success but the doctors are amazed on how well Ava's pain threshold is! The surgery was a long lasting 8 hours (ugg) but the outcome was truely a miracle! They could fuse her neck/spine WITHOUT a HALO DEVICE! She made the BOOKS! This is the only fusion known at Children's Hospital that has been done like this. We spent only 6 days at the hospital and we are home now - Ava is still not walking - but is sitting up and feeling a lot better - Before the surgery we were not sure if she was ever going to walk or sit up on her own - Ava defied all odds (like she usually does!)
I feel that having a group like this has really changed my life - the support is a true blessing to me and my family! I cannot express in words how much everyone one of you have touched me and Ava - I do not think I could have made it though this experience without you - I may not post very often, but everyone is always in my heart and mind -
For the few moments that we though we may have lost our little girl - has changed the way I look at life and especially Ava - She is my beautiful, amazing and smart little girl that has taught me so much! Enjoy life and your children - I am usually not the mushy kinda gal, so please forgive me - but I am truely blessed to have Ava in my life and will not take even a moment more for granted!
We still have a long road ahead of us - As for now, we are just taking it one day at a time!
Even if I have said this before, I will say it again, this is an amazing group of people - and I thank you all for being here!
Shannon and Ava
First I want to THANK YOU THANK YOU THANK YOU for all the thoughts and prayers for Ava... All of them helped so much!
Ava is a trooper - she is so unbelievable - Not only was the surgery a success but the doctors are amazed on how well Ava's pain threshold is! The surgery was a long lasting 8 hours (ugg) but the outcome was truely a miracle! They could fuse her neck/spine WITHOUT a HALO DEVICE! She made the BOOKS! This is the only fusion known at Children's Hospital that has been done like this. We spent only 6 days at the hospital and we are home now - Ava is still not walking - but is sitting up and feeling a lot better - Before the surgery we were not sure if she was ever going to walk or sit up on her own - Ava defied all odds (like she usually does!)
I feel that having a group like this has really changed my life - the support is a true blessing to me and my family! I cannot express in words how much everyone one of you have touched me and Ava - I do not think I could have made it though this experience without you - I may not post very often, but everyone is always in my heart and mind -
For the few moments that we though we may have lost our little girl - has changed the way I look at life and especially Ava - She is my beautiful, amazing and smart little girl that has taught me so much! Enjoy life and your children - I am usually not the mushy kinda gal, so please forgive me - but I am truely blessed to have Ava in my life and will not take even a moment more for granted!
We still have a long road ahead of us - As for now, we are just taking it one day at a time!
Even if I have said this before, I will say it again, this is an amazing group of people - and I thank you all for being here!
Shannon and Ava
&
Susan, Proud mom of Michael (32), Justin (25) Emily (22ds), and Jordan (20).
Just shows you how our kids with Ds continue to amaze everyone! Soooo happy to hear she is home now - prayers continue your way ....