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Post by Renee' on Nov 3, 2006 9:42:32 GMT -5
in the USA that understands taking care of children with Down Syndrome?
I am so freaking frustrated. Lauren is having ear tubes placed again on Monday. The Dr. we met today is clueless. It seems like each doctor (except the heart guy) is clueless. It's like they think she is an alien or something.
The doctor wanted to listen to her chest today so he looks at me and says "can I listen to her heart?" I said, "yea, just ask HER"
She gets up and lifts her shirt. I know, amazing isn't it?
I get so tired of people.
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Post by ALLISA on Nov 3, 2006 10:14:21 GMT -5
She showed him....hopefully she can educate him...big job for a littel girl, no ?
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Post by cindylou on Nov 3, 2006 15:11:53 GMT -5
Renee' -
I understand your frustration---I'm in the NW and there are not any special Ds clinics to take your kids to like there are on the east coast...at least not that I know of.
I have been fortunate to have pretty good docs for the past 13 years. I had to leave one (and he goes to my church) because of his lack of concern over issues with Kaylee. I now have an awesome pediatrician and ENT. I say keep shopping till you find your match!
cindy
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Post by Pat on Nov 4, 2006 8:04:16 GMT -5
Renee, I'd say keep shopping. I went through 2 peds before I found a good one. Sorry he didn't understand.
Pat
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Post by andrewsmom on Nov 4, 2006 11:32:53 GMT -5
Ugghhh...I know exactly what you mean! I have learned (rather quickly) lately how to talk more directly to doctors and how to be ...umm...should I say .... pushy with them. I feel for you! Definately shop around. Good luck!
-Trisha
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Post by Emilysmom on Nov 4, 2006 16:46:57 GMT -5
It's a good thing for docs to learn to speak directly to kids with Down syndrome, in the same way a pediatrician would talk directly to any other child. I am sad to say that when Emily was 7, I was still really "bad" about speaking FOR her and not encouraging docs to speak directly to her. I continue to have to make myself keep my own mouth shut and let Emily answer the questions for herself. I'm not quite sure if I'm afraid she won't understand the questions, or if I'm afraid the doc won't understand her answer..............so I tend to be OVERhelpful.
Maybe you are having to UNdo what moms like me have done!
Susan
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Post by mommygwen on Nov 4, 2006 21:13:12 GMT -5
Did you go to DeWitt Hosp. ? Military Dr. s often have no bedside manner. I was just talking about that to my parents today.
There are some good and some great Dr.s but you may have to shop around. Here in Richmond there is a great ped. whose son has Ds.
I am glad you directed the Dr. to ask Lauren directly.
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Post by Renee' on Nov 5, 2006 8:36:44 GMT -5
No this was a civilian doctor who will be in the OR Monday.
I am having problems with the military clinic she has to use. It is all so frustrating. I am over sensitive these days too though.
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Post by AnnieC on Nov 5, 2006 13:44:03 GMT -5
Please don't get offended...
I am not sure I understand why the dr asking to listen to her heart was so bad? This would not offend me or upset me, but maybe its because Raven is nonverbal that I look at this differently.
How is the dr supposed to know if our children are verbal or nonverbal unless he asks?
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Post by CC on Nov 5, 2006 22:11:38 GMT -5
Awwww girl I can so relate. There have been a few Docs over the years, all I can say is Grrrrr BUT the good ones do make up for it most times  Will be thinking of you and Lauren tomorrow that all goes well with the new tubes  Post up when you can, and let us know all is good CC ~ |
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Post by Renee' on Nov 6, 2006 10:07:50 GMT -5
Annie
Lauren is very high functioning. She can completely answer for herself. She was talking to this man the entire time. You can't ask *me* to do something to *her*. She has a mind of her own and will flat out refuse to be touched if you don't address her face to face. He was not even talking to her. I hate when doctors don't talk to her. They talk over her or ask me if they can do something. The moment he asked to her to listen to her heart she popped up in the chair and she lifted her shirt. Had I instructed her it would have been a fight. She is very independent.
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Post by AnnieC on Nov 6, 2006 11:51:17 GMT -5
I see  That is why I asked, because I wasn't sure of the context of the situation....you are right, if she is talking to him the whole time, that does seem ridiculous! Thanks! Annie |
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Post by Renee' on Nov 6, 2006 12:20:04 GMT -5
No worries. I think I have the worlds most stubborn child. |
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Post by momofrussell on Nov 7, 2006 8:33:59 GMT -5
Well, glad Renee and AnnieC cleared up my thoughts! LOL I had the same thoughts as AnnieC. I can see what you mean about the doc needing to ask HER and not you, but I don't think I would have been too offended... I think some docs are use to just asking mom and dad especially to touch a child. I am not saying he shouldn't be addressing her, but I get why he might have, even if she was talking to him. I get the opposite sometimes.. they do address Russell and he literally has NO CLUE what they are saying to him or wanting to do.. and they will go to touch him and I have to then warn them that it's NOT going to go as they think it will SO, for me, I can see a doc doing this to make sure maybe the child fully would appreciate a doc touching the child to listen to the heart. Because Russell would not appreciate it. If that makes sense? But... regardless.. I do agree more docs should address ALL kids!!!! A. |
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Post by ValerieC on Nov 7, 2006 20:46:44 GMT -5
I'm sorry for your frustrations. I still get shocked when I hear things like this. I have not had this kind of issue. All of our docs have been great.
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&
Susan, Proud mom of Michael (32), Justin (25) Emily (22ds), and Jordan (20).
