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Post by MaggiesMom on Jan 15, 2007 23:47:06 GMT -5
Hello all!
I just posted on the update thread. Didn't realize how long it's been!
Maggie is not doing well with her speech. We've done typical speech therapy, oral motor therapy (still doing it), auditory verbal therapy, and sign.
Unfortunately, we feel Maggie has dyspraxia as well as her hearing loss, so it's making speech very difficult.
Does anyone do Prompt or Cued Speech? I saw the Down's Cue website, but I need to talk to someone who's done this.
Prompt is supposed to be different, more for motor planning. But I'd love some information on it too.
I'd love some more information if anyone has some.
Thanks!
Robin M - Maggie's mom
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Post by CC on Jan 16, 2007 1:16:10 GMT -5
Hey Robin ;D WELCOME BACK, Long time no see Chris too is speech Apraxia (sp?) and mild to moderate hearing loss and the ST have used Cued speech with him for quite sometime, part of the "total communication" program. You may have already seen these but just in case you haven't ... www.cuedspeech.org/sub/cued/default.aspand www.cuedspeech.com/whatis.aspI will be totally honest here Chris had done very well with the Cued Speech but I almost think with him we need to pick sign or cued, KWIM?? I know the literature says both can work fine together but for my guy Hmmmm Both together seem to confuse the heck out of him or Maybe they confuse us Hmmmm KWIM. Not sure but for my guy using both I think is not the answer. BUT with all that said, I can honestly say the Cued Speech is amazing. Just my thoughts CC ~
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Post by trishasmom on Jan 16, 2007 6:21:44 GMT -5
Hey Robin ;D WELCOME BACK, Long time no see Chris too is speech Apraxia (sp?) and mild to moderate hearing loss and the ST have used Cued speech with him for quite sometime, part of the "total communication" program. You may have already seen these but just in case you haven't ... www.cuedspeech.org/sub/cued/default.aspand www.cuedspeech.com/whatis.aspI will be totally honest here Chris had done very well with the Cued Speech but I almost think with him we need to pick sign or cued, KWIM?? I know the literature says both can work fine together but for my guy Hmmmm Both together seem to confuse the heck out of him or Maybe they confuse us Hmmmm KWIM. Not sure but for my guy using both I think is not the answer. BUT with all that said, I can honestly say the Cued Speech is amazing. Just my thoughts CC ~ We use sign with Trisha and the speech therapist tried cued speech but found that she would confuse the cued speech with the signing. So we just sign with her. She also has a mild to severe hearing loss.
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Post by Jessie on Jan 16, 2007 10:32:54 GMT -5
I would say we've been fairly successful with cued speech with Jason. The area that we have used it (forced it) the most and where it has been successful is him asking for things. We start off with the I sign and he takes it from there. That's the only cueing we have to do now. Once it's been done repetitively they can start dropping the cues - probably similarly to signing - once they learn to say the word they drop the sign.
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Post by lespring on Jan 17, 2007 11:22:01 GMT -5
Hi there! I'm Leah, from Downcues.com.
I'm a parent of a child with Down Syndrome, and I'm a sign language interpreter, and Cued langauage transliterator, using Cued American English.
Sign alone will work for you for a time...until school starts and you're really working on reading, writing, sounding out words, etc. because sign has ZERO correlation to the written word. NONE! Sign is a conceptual language.
Many parents have the habit of saying a sentence such as, "Do you want some juice?" but only signing one or two words from the sentence. Unfortunately this affects the "Langauge In/Language Out"" concept. Our kids are visual learners, and if we're only putting IN partial sentences, that's all we can expect to get back from them.
People wonder why kids with DS at age 3 their vocabulary is largely limited to nouns and verbs? Hmmmmm isn't that what we usually end up giving them in sign, and leaving out everything in between? Part of the problem is that ASL is not English. There are many words that have no sign and must be fingerspelled. I don't know many 4 year olds with DS who can read a fingerspelled word. Then there is the whole memorization problem....there are thousands upon thousands of signs, with new ones appearing just like English has new words that are developed.
But with Cued Speech, there are just 8 handshapes, and 5 placements. THAT's IT! Once you know how to cue the "mmmm" sound, you can cue it in any word that has the sound.
There are a lot of sytems that are loosely referred to as "Cued Speech". Visual Phonics is the one most commonly used. The difference between the other cuing systems and Cued American English is that the other systems were designed to address articulated sounds in isolation only. They were not designed to be used as a form of communication. While they CAN be used to make words and some phrases, they are laborious and extremely frustrating. Cued Speech (Cued American English) is the only one designed as a method of communication.
As far as using both together, its' very easy. Lets say Johnny signs, "Want juice". You say, "That's right, that's how we SIGN it, here's how we SAY it...."I want juice", or "Can I have juice please?"
Feel free to contact me at downcues@comcast.net if you have more questions.
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Post by MaggiesMom on Feb 11, 2007 0:59:35 GMT -5
Hello again.
Thanks for your comments!
I sent lespring an email. I'd love to find out more information.
Thanks!
Robin M
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