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Post by paulinemjc on Feb 28, 2005 15:22:47 GMT -5
Nicky has had his appointment with the Haematologist, it was neither good not bad. The haematologist is getting in touch with cardiologist at Alder Hey Children's Hospital in Liverpool to ask him if there is anything he wants him to do for Nicky as the problems with his very high blood count are caused by his heart/lung condition and Nicky is well know to the cardiology department there. He is willing to do a venesection if the cadiologist ask him to but isn't really very keen as it won't be nice for Nicky due to his lack of useable veins. If any of you would like to learn more about Eisenmenger syndrome there are a number of informative sites on the web. Pauline UK. TEXT
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Post by donnita on Mar 2, 2005 16:45:54 GMT -5
Thanks for the update Pauline. I will continue to keep Nicky in my prayers!
Donnita
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Post by shellk on Mar 5, 2005 21:31:12 GMT -5
Pauline,
I'll be sending positive thought to you and Nikki.
Hugs to you both, Michele
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Post by samanthajosmom_12 on Mar 12, 2005 4:14:51 GMT -5
i will keep you and nicky in my thoughts and prayers. sue
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Post by Jackie on Mar 20, 2005 18:59:58 GMT -5
Pauline...is this the same thing that Spencer Tutty has?
Jackie
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Post by paulinemjc on Mar 21, 2005 7:56:31 GMT -5
Yes Jackie, Spencer and Nicky both have Eisenmenger syndrome along with DS and other medical problems. I know the Tutty's quite well and Spencer gives me some hope for Nicky's future. Pauline
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