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Post by jelanismom on Mar 24, 2008 9:18:22 GMT -5
I know this topic has been covered before, but I need to ask again. It's fairly common I've read when it comes to hairloss in our children...but for the most part, Jelani's Alopecia has been treated and is growing back so slowly, if at all and he even lost one eyebrow. The topical steroid cream the dermo. gave me to use on his scalp has worked a little to stop his hair from falling out, but the new growth isn't noticeable after 3 months using it. He has bald spots all over and lost most in the front and I had no choice but to cut his hair very short...and now it reveals all the bald spots ... I refused the scalp injections although now I'm reconsidering because of his appearance. I was told they use a numbing creme beforehand but that there's many return trips needed. His thyroid is fine. Does anyone have a similar problem and have you seen a more rapid hair growth if at all after the injections? Any advice appreciated because it's saddening and in the meantime he hates hats and just tosses them off.
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Post by damarasmom on Mar 24, 2008 9:52:45 GMT -5
Dawn,
I have no experience with this, but just wanted to say that I'm sorry that you both are having to deal with it! I hope you find some answers and it's a simple fix...the whole scalp injections don't sound like much fun.
Good Luck!!!
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Post by Chris too on Mar 24, 2008 10:09:37 GMT -5
What are the risks of the scalp injections? I think you have to set aside any "willies" you may have over the idea so that you can evaluate the actual risks versus the benefit. What is the success rate of these injections? Could you end up taking the risk and not receiving any benefit?
What are the risks of not having the treatment? If you don't have the injections, how likely is he to grow the hair back? Does this treatment have any long-term effects, either good or bad? If the hair will probably grow back eventually, and it doesn't bother Jelani, than shave his head to within a sixteenth of an inch (just a shadow), and let him go. Plenty of boys have their heads "shaved" every spring - no biggie.
Dawn, remember to do the thing that you seem to do best & have a good laugh at this situation, be glad he's not a girl, take some great before & after photos, post them here & sit back & say "Aww, he's so stinkin' cute no matter how he wears his hair!"
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Post by tiffany on Mar 24, 2008 11:39:28 GMT -5
I am sorry you are going through this! I dont have any suggestions, just that be glad he is a boy! He is VERY cute, by the way!
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Post by jelanismom on Mar 24, 2008 12:41:00 GMT -5
Thankyou shirley, chris and tiffany, you guys made my day! I've been sorta tearful inside over the whole thing and I feel much better reading your posts. I'll post back with pics when I take them...it's such a crime thinking that his trademark has always been his long curly hair...and to have it gone breaks my heart...there's little bald patched everywhere like the barber went too close!!! But knowing he's a boy and not a girl, I guess it's easier to think this way since his head is now shaved to a 16th!!! I didn't even want to send him to school today, I took him myself and explained to the teacher and aids why he looks the way he does. thanks for your advice and compliments and yep he's still my cutie pie with or without hair.   |
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Post by jelanismom on Mar 24, 2008 13:46:13 GMT -5
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