|
|
Post by faithhope on Apr 3, 2008 16:33:32 GMT -5
Thanks Everyone, you are all great with your advice and just helping me feel loved. I guess I do have alot of big changes going on and yes probably still the hormones are not helping. I was thinking the other day that if it doesn't get better soon I will seek some help. Though now that i think of it truly I am better. I am not the best but better. I don't cry everyday, I don't just look at Noah and think Ds and in fact I can't believe that he does have it.
We actually walked to the beautiful beach second day we got here ( his mom lives about 1 mile from it). It was so nice, though we weren't too prepared, now we bought a tent so that Noah can get some relief from the sun. He is so sensitive to it.
Thanks for all the advice. I called the childrens resources for special needs kids and they should be calling me back to set up an appointment sometime next week. I have know idea how I will react when they come by to see Noah. I think that will be a big deal in facing the reality. Guess it's good and a little sad too, but mostly good. Each one of you said something that truly helped and touched my heart. Love to you all, and love to your blessed children.
I am the mother of one awesome, adorable little guy, to quote Susan.
I want to try to send a video that we took of Noah today, he just turned 15 weeks! We just bought him a playmat and normally laid him down on it and he would just stare at the toys, only occasionally wacking them accidentally. Well today we propped him in a sitting position and now he is actually purposefully hitting the toys over and over, it is the cutest thing ever and we are so proud.
How could I show you that video? I still don't know how to do that. Sorry I am sure someone here has tried to explain it to me.
OK enough for now, Love
Jessika
|
|
|
|
Post by Myria on Apr 3, 2008 18:18:44 GMT -5
Hi Jess, I can't wait to see Noah in action! You can load the video to photobucket or youtube or any video sharing site and paste a link to the video here. Let me know if you need more detail on how to do that  |
|
|
|
Post by Chris on Apr 3, 2008 20:38:53 GMT -5
Jess, Boy, can I ever relate to missing your mom! Before my first daughter was born, my then husband kept talking about getting transferred to another state. At the time I was childless and ready for an adventure. I really wanted to have a baby and after surgery and fertility treatments, I was thrilled to learn that we were expecting. Wouldn't you know, just a few weeks after learning of the pregnancy, my then husband comes home and tells me that he is getting transferred to Michigan in six weeks! I cried and cried and he was totally baffled. Gosh, I really needed my mom and sisters when I knew I would be a mom. I stayed in Texas to sell our house and finish teaching the semester. By the time that was all done it was too far into my pregnancy to move so I moved in with my parents. It is always hard to move back home, especially when you are about to give birth! My marriage was also fallying apart at the time. Talk about stressful. It just worked out that I moved to Michigan when Alyssa was 9 weeks old. I thought my heart was going to break when I left my mom at the airport.  I have been in Michigan for almost 18 years now. Although I still miss my family in Texas, I have learned to manage. I have gotten through the tough times by counting my blessings. I guess this whole story was just to let you know that I have been in a similar situation. Alyssa didn't have Ds but has her own challenges. Also, neither my then husband or I had any family in Michigan. I didn't know a soul. My church family became my family. When Sarah was born I met so many wonderful people who also have children with Ds. Get involved in a church and contact a support group. I think you will be amazed at how much more optimistic it will make you feel. I just want to echo what a couple of the ladies have said and encourage you to make an appointment with a doctor. Why be depressed if you don't have to be? Jess, you have touched so many hearts on this forum. So many of us can relate to your pain. I know I am aching for you. I want you to find that joy that you deserve. Chris |
|
|
|
Post by Googsmom aka Jennifer on Apr 3, 2008 22:42:01 GMT -5
Always check w/ the doc before putting sunscreen on Noah. Even the baby kind. Brook couldn't have any untill she was one yr old. All kids are different though. A tent sounds fun! W/ a cute umbrella and everything? How fun. You are so lucky. Although it was a beautiful day here today no where near being at the beach or Florida sunshine state. Lucky Video..... hurry, post it, I can't wait  |
|
|
|
Post by Cbean on Apr 3, 2008 23:34:28 GMT -5
Good luck in Florida! I too agree...go to the beach! Get that baby's feet in the sand sooooon! Emily is a total beach bum! Can't get enough sand in her pants! Also, why don't you start investigating programs for YOU first. Maybe you might find a Mom's group. It might help you to find a support group where you can talk to people in person! Don't allow yourself to continue to be in such pain. Take care of you. I went through a lot with Emily when she went through a seizure disorder. I totally went into a depression after she outgrew it. I was so underwhelmed with life. I had two beautiful children, yet I couldn't see any joy in life. I went on antidepressants for a couple of months. It was like a vacation. Also, try to give strangers the benefit of the doubt. We went to Disney when Em was only 5 months old. Everywhere we went, I could feel eyes on us. One woman came up to my husband and said something to him. I went over to him and asked if she "saw it?" He asked me why I said that and I told him it was b/c I thought we were getting stared at constantly. He told me the woman said we had the most beautiful baby in Disney - and she wasn't the only one saying things like that. I also found my own attitude had something to do with it. You will find more times than most, Noah will bring the best out in people. I was in Marshall's one day and the cashier went on and on about Em. The next time we were in the store she saw us, got all excited and exclaimed "there's my friend again!" We spoke a minute or two and wished each other a "Merry Christmas!" and she gave Em a big kiss on the top of her head. (She was sitting in the shopping cart.) Now some people would be like "Oh my gosh" or "how could you let her do that?" My reaction, how could I not? One thing my little girl with DS has taught me is the world is still a very nice place. Try to get past the dx and see Noah, your baby. I bet he's beautiful! |
|
|
|
Post by ALLISA on Apr 4, 2008 3:19:49 GMT -5
A word about support/DS groups.....cause I think you are a little hesitant to join one......picture all of US.....in a room chatting....it is the SAME thing ......and you like us okay and yes.... I pretty much cried my way through the Early Intervention evaluation.....was so early for me and so new .....they understand !! |
|
|
|
Post by faithhope on Apr 4, 2008 7:52:28 GMT -5
Hi Thanks again for all the loving words. You know it is so funny because after making the comment about people not complimenting Noah, we went shopping last night to 2 different stores and at each place we must have been stopped a dozen times with compliments of our precious, beautiful baby! Hahaha that'll teach me, God always has a way.
|
|
|
|
Post by Chris on Apr 4, 2008 8:17:13 GMT -5
Jess,
You are going to meet TONS of people who have a soft spot for people with Ds. Many of them have loved a person with Ds and want to share their story. Believe it or not, many people only see your gorgeous baby and wo could resist him? ;D I'm so happy that you had some good experiences yesterday.
Chris
|
|
|
|
Post by Googsmom aka Jennifer on Apr 4, 2008 10:24:45 GMT -5
Ok Jess, here is a story from the other day about people staring at Brooker. So we are up at OHSU, Mary, Brooker, Mary's dad and step mom and myself. We all were there ALL day getting Mary ready for her surgery stuff and so Brook is in her scooter and were all going her and there and everywhere. After awhile mary's step mom says to me "Why does everyone stare at Brook? I've noticed we can't pass a person w/o them staring at her or stopping us to say hi." I just kinda looked at her and said "Cuz she's so darn cute silly." She agreed but then says "No one stares at J and A like that" (Marys other bro and sis) like she was all sad  I didn't know what to say  so I just says "sure they do you probally just don't notice it" (Made her feel better I think) My point of this rambling is everyone loves babies and they will always look at them. They see the cuteness, nothing else. When they stare, just smile real big. Sometimes i'll even give em' a wink |
|
I didn't know what to say 
so I just says "sure they do you probally just don't notice it" (Made her feel better I think) My point of this rambling is everyone loves babies and they will always look at them. They see the cuteness, nothing else. When they stare, just smile real big. Sometimes i'll even give em' a wink