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Post by goodgoats on Mar 25, 2005 2:03:58 GMT -5
I am nursing my 7 week old DS baby and have noticed that sometimes when he is done that he makes these noises - hard to describe - like he is having a hard time catching his breath. Kind of like he is choking or breathing in harder and making a sound when he does. The rest of the time his breathing is relaxed. Anyone else experience this? Am I explaining it well enough?
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Post by ALLISA on Mar 25, 2005 14:48:21 GMT -5
I can't help much as I didn't nurse...but I do know that our kids tend to have very small nasal passages & tend to sound "junky". Could it be related to that ? a combo of residual milk in his mouth & the tiny passages ?
I recall Erin always sounding sick & being extra mucossy...but it definitley has stopped with age ~
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Post by goodgoats on Mar 25, 2005 15:05:48 GMT -5
That might be related. Sometimes he sounds like he is almost having a small asthma attack (I wish I could do sounds over this message board!). I have wondered if it is related to maybe his low muscle tone. He is still on oxygen (hopefully he will be off of it this coming Monday).
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Post by wrblack on Mar 25, 2005 16:06:45 GMT -5
Couldn't nurse a baby if I tried. And would hate to be an alarmist. But reflux and reflux with aspiration can be problems, potentially dangerous, with babies, especially babies with Ds. Hopefully your baby's doctors and you would already be aware of any problem of this nature. But I'd strongly recommend you discuss this with your pediatrician. Maybe it's nothing that a good burp wouldn't fix. Hope so. -- Bob
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Post by goodgoats on Mar 25, 2005 19:28:33 GMT -5
Thanks for the reply! I did a little research and found the following: "One condition called Sandifer syndrome presents with swallowing actions and an unusual head tilt, and reflux that may or may not be obvious. Any infant that seems to be continuously choking, gagging or making swallowing noises should be evaluated for GER." (from www.ds-health.com/reflux.htm). So, this is a start for me to look at, I think. |
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Post by kimnz on Mar 26, 2005 0:09:09 GMT -5
Hi Kim,
I nursed our youngest little boy Jordan (almost 7 now and also has ds) for two years! I also fed our other four children. Jessica (our third) being fed the longest as she had asthma and eczema.
We had constant problems with obstructional apnoea. So if we didn't get a burp up the milk would come up and he would stop breathing for a little while, not to the blue stage at all. Although Jordan would often tire (and he didn't have a heart problem) he would not become breathless as your little one seems to.
Do you think it would be worth mentioning this to a medical person in case it is related to his heart? I note you say he is on oxygen and I presume it may be related to this?
Does it take a long time to feed him? For Jordan it did take quite a while to feed him as he suck was not super strong but definityly strong enough to get a good feed. That's why we were so vigilant in burping him as if he brought his food all back.....I had to feed him all over again.
Congratulations on the birth of your sweet baby! Apart from the feeding, how is he/she doing?
Take care
Kim nz
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Post by goodgoats on Mar 26, 2005 1:30:03 GMT -5
Osiyyah does not get to the blue stage either but, I have wondered if he has had aspiration some. Yes, I plan on mentioning this on Monday when we go back for his next appointment. He had a echocardiograph while in the NICU and everything was perfect. His oxygen is most likely coming off on Monday. He was preemie and had to come home on it for a month or so. It can take awhile to feed him just because he has a weaker suck and loses interest at times. Although, I have noticed the past week that his suck is harder and he is figuring out what he is to do more quickly when I put him up to the breast. I am doing research about GERD now. It appears to me that this is what he has because he has several of the symptoms of it - low weight gain, choking, wheezing when he gets to much milk at one time. I have been nursing him using a supplemental nursing system. We were doing this to try to get more down him and help him to gain weight but, I noticed that when we pushed more down him that his asthmatic sounds increased. It appears (according to what I have read so far) that it is better to nurse him more often and less amounts, instead of big feedings every 3-4 hours. I have also found a website that deals specifically with Ds and GERD. Here is the link: health.groups.yahoo.com/group/dsreflux/He is doing fine otherwise! Thanks for the help!! |
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Post by tornadoxs2 on Mar 26, 2005 12:30:01 GMT -5
my son Benjamin 11 months had the same problem and when i talked to the doctor i was told he had Laryngomalcia. They told me he would eventually grow out of ti but he is 11 months and still has the problem. It is nothing to worry about but they told me to change his postion when he does it it and it should be ok.
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