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Post by christie on Mar 28, 2005 0:05:56 GMT -5
OMG lets just say YIKES  this new med is not working at ALL and just making things worse for my little man   LAURIE, if you read this girl, tell me how soon before the meds work, if they will work at all?? Chris has only been on a short time and OMG if this is supposed to help, we are SCREWED Sorry to vent BUT I HATE this trial and error with new meds, I just do CC |
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Post by meghans_mom on Mar 28, 2005 8:37:17 GMT -5
CC - not sure what med Chris is on?
let me know, K? I have family in town so my on-line time is limited this week...if you want email me avntgardnr@aol.com - just put that it's from you in the subject line & I'll let ya know what I can....many HUGS!
laurie
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Post by wrblack on Mar 28, 2005 10:56:08 GMT -5
CC -- Sorry to hear this. And again may be popping off out of turn. But thought I'd explain why I had suggested looking into a consult with Dr. Capone. He has specialized and done research on kids with Ds and autism and a variety of other dx's. I've got the impression that he is particularly strong and has extensive expertise on medicating for these other problems. Oh, I've also got the impression that Dr. Capone is a really good man as well as a good doctor. Maybe you or Chris's doctor at the Judy Center would want to look into at least a phone consult. Here's a link to some info: www.kennedykrieger.org/kki_staff.jsp?pid=1037That last email, phone and fax contact might be useful. -- Good luck, Bob |
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Post by Emilysmom on Mar 28, 2005 20:09:26 GMT -5
I agree Bob......I have attended a couple seminars which were done by Dr. Capone, and during one of them, he spoke on meds used to treat dual diagnoses like Ds and OCD or ADHD. It was VERY interesting.....I wish I knew what I did with all the info from that seminar! I was impressed each time that Dr. Capone was so willing to stay after each session and talk at length with parents. I was MOST interested at that time on what he had to say about vitamin therapy and Piracetam and he answered questions individually for me. GREAT guy!
~
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Post by PaigesMom on Mar 28, 2005 21:21:42 GMT -5
Susan ~ You were so right about Dr. Capone. He has an excruciatingly painfully long waiting list BUT, I talked to him at the confrence and he was willing to see Paige that very next week. To soon for me, but we are going in April, and not that I'm happy that I *HAVE* a reason to go see him, I am happy I am seeing him, if that makes any sense, lol.  Again, if anyone is interested I have ALL OF THAT information that I'd be happy to copy and share with you all. |
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Post by christie on Mar 28, 2005 21:45:09 GMT -5
LAURIE girl THANKS, email on the way  BOB, THANKS I will keep the link if needed down the road. I have nooo problems with the Doctor Chris is seeing he has much much experience with all this stuff and working with ones with DS, its the MEDS and the trial and error to find the right one that, to be blunt, just SUCKS Chris sadly is one that has for some odd reason been a hard one to medicate for anything, Geez I swear if it has one very odd side affect, my boy will get it So far this is only the second med we have tried with Chris for OCD and from what I am hearing you just keep trying till the right fit is made, Hmmmmm  The last med was sooo not good for Chris and I refused to try anything else BUT it is necessary, so I guess we have to just keep trying. It just breaks my heart to see a kid doing things he NEVER ever did before I put this med in him and I will bet my last dime the moment I take him off he will not do these things again. Sorry guys to complain but this SUCKS OHHHH DEBBIE girl I would love what info you have and more then willing to pay for the copies and the postage I truly could use any and all the help I can get on this one ~ CC ~ |
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Post by christie on Mar 29, 2005 14:45:04 GMT -5
BOB, THANKS again for this link, as I said I would keep in case down the road.... Funny how things can change and looks like after talking with Christopher's Doc today we may be down that road ALREADY. Just wish this Doc/Clinic was closer to us but may just be what is needed so I will for sure investigate. I will try anything at this point. The Doc told me to STOP these meds NOW, which I have done. Have to say thou I do feel like such a Bad person for putting this stuff in to Chris, KWIM K, back to square one I guess CC |
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Post by Danielle on Mar 30, 2005 8:13:46 GMT -5
Oh, CC, so bummed for you!! Glad he's off these meds since they clearly weren't right for him....but I hope you can find something that Chris can tolerate and that helps him soon. Thinking of you, girl....take care.
Dani
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Post by PaigesMom on Mar 30, 2005 17:18:28 GMT -5
CC~ Have you checked your PM's?
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this new med is not working at ALL and just making things worse for my little man 
&
Susan, Proud mom of Michael (32), Justin (25) Emily (22ds), and Jordan (20).
