Post by kokie on Mar 30, 2005 18:41:21 GMT -5
Hi Everyone ~
I am new here. My name is Qadoshyah Fish. I am the oldest of 11 children (being 16 yrs old). My mom just had twins 8 wks ago and Twin A (the boy, Osiyyah [The Lord Is My Maker, in Hebrew]) has DS. He is a major blessing and we are so thankful for him. My mom, Kim, is also on this board under the name "goodgoats".
Anyways, I am studying all about DS, everything from the genetics/chromosones/DNA, to every single possible health concern. I hope to put a website up in the near future with tons of info on it about DS. At the moment I am studying about weight gain in DS babies, as that is the pressing issue at the moment. So, I have some questions for you all -
Normal babies gain about 20-30 grams a day. Our Dr. is expecting and pushing my DS brother (Osiyyah) to gain as much as a normal baby. Currently he is gaining 10 grams a day. He is only being breastfed. The doctors would like us to use NeoSure formula every other time and we would like to continue on the breastmilk.
- What did your DS baby gain a day, a month and a week?
- Did he gain slower than a normal baby would?
- If he did gain slower, why do you think he gained slower? Because of the DS condition or because of something else?
- Did you only breastfeed your baby?
- Or, did you supplement?
- If you supplemented what did you use?
- What was the average weight gain?
Thanks very much for the help
!! If you have any other info, links, etc, I'd appreciate it !
Since I am hoping in the near future to put up a DS info website, I may ask some of you, if I can use your "experience" as an example on certain parts. But, that'll be a little bit later . . . (within the next 6 mths, Lord willing).
I am new here. My name is Qadoshyah Fish. I am the oldest of 11 children (being 16 yrs old). My mom just had twins 8 wks ago and Twin A (the boy, Osiyyah [The Lord Is My Maker, in Hebrew]) has DS. He is a major blessing and we are so thankful for him. My mom, Kim, is also on this board under the name "goodgoats".
Anyways, I am studying all about DS, everything from the genetics/chromosones/DNA, to every single possible health concern. I hope to put a website up in the near future with tons of info on it about DS. At the moment I am studying about weight gain in DS babies, as that is the pressing issue at the moment. So, I have some questions for you all -
Normal babies gain about 20-30 grams a day. Our Dr. is expecting and pushing my DS brother (Osiyyah) to gain as much as a normal baby. Currently he is gaining 10 grams a day. He is only being breastfed. The doctors would like us to use NeoSure formula every other time and we would like to continue on the breastmilk.
- What did your DS baby gain a day, a month and a week?
- Did he gain slower than a normal baby would?
- If he did gain slower, why do you think he gained slower? Because of the DS condition or because of something else?
- Did you only breastfeed your baby?
- Or, did you supplement?
- If you supplemented what did you use?
- What was the average weight gain?
Thanks very much for the help
!! If you have any other info, links, etc, I'd appreciate it !Since I am hoping in the near future to put up a DS info website, I may ask some of you, if I can use your "experience" as an example on certain parts. But, that'll be a little bit later . . . (within the next 6 mths, Lord willing).
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