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Post by jonpaul on Apr 1, 2005 12:38:12 GMT -5
After 3 1/2 months at the NICU I thought Tommy would be home by now. Unfortunately, he is still having malabsorption issues and requires TPN as a supplement to his formula feedings. I have repeatedly suggested to the doctors that maybe he can come home and receive his TPN there. Finally, the doctors are considering making that move but now I am a little scared about it. Does anyone here have any experience with having a baby at home that requires TPN ? Or any experience with malabsorption ? I hope I am not taking on more than I can handle, but I can't bear to leave the baby in the hospital any longer.
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Post by Danielle on Apr 1, 2005 15:50:58 GMT -5
Hi,
I'm afraid I have no experience with this but I did want to mention that you may be entitled to some at home nursing care, should the medical need be more than you feel you can handle or are trained to do but the treatment can be provided at home by a nurse or other medical professional. Check with your insurance and push hard for whatever it is you need. GOOD LUCK!
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Post by christie on Apr 1, 2005 22:16:55 GMT -5
HUGS girl, YES I can bet you want your baby HOME  Many wishes going out that you can bring him home right away. I AGREE with Dani that YES, insurance may cover nursing care if necessary. Hope you don't mind me asking BUT what is TPN?? CC from New Jersey  |
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Post by meghans_mom on Apr 2, 2005 7:46:32 GMT -5
Can;t help, although I have friends who have kids on TPN...one atleast who came home on it as a baby.
CC - TPN = Total Parenteral Nutrition, Parenteral meaning thru a vein, or tube directly into the stomach, etc (enteral being the mouth)...usually a formula specially compounded by a pharmacist.
JonPaul - my thoughts and prayers are with you and Tommy. Laurie
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Post by sharen on Apr 2, 2005 12:14:32 GMT -5
I may not be much help, and to be honest I never heard of TPN , until Laurie explained it in her post, but I dont know if this would be the same thing , Jordan came home from the hospital last June with a G-Tube and a pump and I was terrified , because I had to learn how to program the pump and hook him up to the G-Tube for fluids only, Jordan was asperating fluids and was not allowed to drink. They did teach me some before we left the hospital , and then had a In home care nurse come to my house, an hour after we brought him home to help show me again , and it helped so much , and you can call them 24-7 and if they cant help you over the phone they will come to your house. And to be honest it wasn't near as bad as I thought. To tell you the truth anymore I believe I could be a nurse with all the things I had to learn and do at home LOL. Like I said im not sure this is the same thing but if it is similar I hope this eased your mind a little. I pray that little Tommy get's to come home, because I know being in the hospital that lone is soooo hard.
Hugs to Tommy
Sharen
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Post by paulinemjc on Apr 2, 2005 12:32:09 GMT -5
Hello.
TPN feeding and G tube feeding are not the same. TPN is far more complex and exact and everything has to be kept sterile etc where as you don't have to do this with g tube feeding. Nicky has been fed by g tube for over 11 years now.
I hope Tommy soon gets home from the hospital and I am sure you will soon become experts at TPN feeding.
Pauline UK
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Post by cmedrano99 on Apr 2, 2005 21:49:02 GMT -5
Hi there, Congratulations on your baby and hopfully to soon be home!
My baby son, been g tube fed all his life(34months) and we also was on TPN for 9months last year!!!
We have a hard time gaining weight.... still do. Pray that we don't have to resort back to TPN!
It is scarey and lots of work but to see your kid at home... is a major BLESSING!
Can email me at medranoc@bellsouth.net and put TPN in subject... I will get it.
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Many wishes going out that you can bring him home right away.
