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Post by sharen on Apr 13, 2005 15:23:19 GMT -5
Laura I read your post on Vicki's , about having the Nissen Fundo done, and you mentioned about not being able to throw up after having the Fundo done. Jordan had the Fundo done June 2004, and the doctors never mentioned that he would not be able to throw up anymore. This winter Jordan had the flu and he vomited for about 4 hours and had no problem, Yuk LOL. Is there diffierent types of reflux operations?? I heard so many different stories before he had it done and it was scarey, Like one nurse said he would never be able to eat food again , which was not true, I did check everything out before we had it done. Sharen  |
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Post by momofrussell on Apr 14, 2005 8:05:46 GMT -5
From our Ped GI docs (because I asked all about it when Russell was younger) they said right AFTER you have the surgery things are different.. you can't vomit right after... or it's difficult... but after a couple months or so, you CAN....
It would be highly unhealthy to NEVER vomit....
A.
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Post by paulinemjc on Apr 14, 2005 8:57:37 GMT -5
Hello.
Nicky can NOT vomit since having his fundo 11 years ago. He has a gastrostomy so if I know he is feeling ill I open the cap on the tube and the stomach contents come out that way.
Pauline UK
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Post by momofrussell on Apr 14, 2005 9:09:19 GMT -5
Well, see how much I know.... LOL... so what IS a gastrotomy if I may ask?
I know there is more then 1 kind of fundo surgery, but the one they were talking about possibly doing with Russell, he would have been able to vomit again...
We never had the surgery done though....
A.
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Post by paulinemjc on Apr 14, 2005 9:23:53 GMT -5
Hello.
A gastrostomy is a feeding tube directly into the stomach.
I guess we are learning something new all the time ;D ;D.
Pauline UK
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Post by momofrussell on Apr 14, 2005 9:39:50 GMT -5
A G-tube? LOLOL... don't give me medical terms Pauline... it throws me off heehee.... I think I get it now though...  A. |
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Post by PaigesMom on Apr 14, 2005 14:00:21 GMT -5
I'm just chiming in here, lol --
When my son who does not have DS was a baby, he suffered severe, severe, severe reflux and was a severe failure to thrive.....
We went thru the process of seeing a surgeon, etc. to have a nissen done - the surgeon told me that he would NEVER be able to throw up again, and that he would not be able to eat food by mouth again, except sips of water and he would be fed solely thru a G-Tube. They said a few years later, they would reverse the nissen, but he would have feeding issues, etc. etc. etc.
Thankfully, my pediatrician talked me out of that, and he did get better. All 35lbs of him now.
There must be different procedures!
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Post by momofrussell on Apr 14, 2005 15:09:54 GMT -5
That is very interesting Debbie. In all my readings and with my Ped GI docs we had with Russell, they all say you re-introduce food and liquid... slowly... but they can be mouth fed after the surgery. I did read that in some instances a G-tube would have to be used after the fundo but it didn't seem to be common in what I have read. .... who knows.....from what i gather, it can be done with or without a G-tube. I am thinking depending on the child and the severity of issues would determine the G-tube or not. I can't seem to find for sure if a child could never throw up again.... since our docs said eventually Russell would be able to.
I did notice there are two types of fundos....
Nissen and Toupet fundoplication... but the Nissen one is the one usually done....
VEDY VEDY INTERESTING........
A.
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Post by sharen on Apr 14, 2005 16:42:52 GMT -5
This is very interesting , all the different answers , with having the fundo done. Jordan did have a g-tube for liquids, only because he asperated liquids. He did get to eat the next day after surgery, only soft foods like pudding applesauce, yogurt and spaghetti'os. If I can remember correctly he had to wait for more solid foods , about 3 or 4 weeks. And also very small bites. And it wasn't very long with the G-tube about 2 months, then he was put on Thick-it honey texture. and knock on wood he has been healthy since. We go in June for another video swallow , to see if we can thin the Thick-it , cross my fingers and toes  Sharen |
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Post by PaigesMom on Apr 14, 2005 19:49:06 GMT -5
I really dunno ;D
I know the surgeon and the Ped GI dr.'s were waiting and waiting and waiting for him to get better on his own. The surgeon said that if he got a stomach virus, it would be extremely dangerous and we would have to open up the G-Tube for stomach contents to come out of. I was so upset that this might be happening.
And with the food. He said no food, that his esophagus would be completely wrapped around his stomach so no contents could get in or out. He said when he was about 5-6 they would reverse it and that then he could eat again, but we would basically have alot of feeding and swallowing issues.
I'm just thanking God, like a miracle, he got better. Now he's perfect. He was so sick, they thought he had a tumor on his vomiting center, or CF or possibly something neurological going on - he was emaciated and malnourished and they told me that he would have developmental delays b/c of it. He does not. He was almost 9lbs at birth, and only 13.9 lbs at 15 months old. It was terrible.
I hope whoever wants to know, can find out the true answer, lol - I'd like to know.
Debbie
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Post by momofrussell on Apr 15, 2005 5:18:04 GMT -5
Silly me... I should have asked the GI doc Kevin went to see yesterday... Kevin had an endoscopy done... and it didn't even dawn on me to ask the doc.... but... ask me if I even liked the doc LMAO!
Gosh Debbie, I would have DEFINATELY never would have even considered it if any of our Ped GI docs (we saw 3) would have told me what they told you about the fundo surgery. So I understand your concerns and would have NOT had it done either. Russell didn't gain weight well either until he was over 4 yrs old. He ate and was active and not lethargic so it didn't really concern me or the docs, but he was 18 lbs until almost 4 yrs old.. he was the TINIEST little guy. He went down to 17lbs around 2 1/2 - 3 yrs old because of the reflux, but he forged ahead.
A.
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Post by laurasnowbird on Apr 19, 2005 13:23:02 GMT -5
Sorry, I just saw this. We were told by both the pediatric GI and the surgeon that Ethan would be unable to vomit or belch after the fundo. Sounded pretty darn extreme to me, and I worried that if he swallowed something that I NEEDED him to vomit (like poison) he would be unable to.
We work with Sara Rosenfeld-Johnson and her associate Lori Overland for Ethan's feeding and oral motor issues. I talked it over with Lori, because I was concerned that it might have an impact on his eating, and she said that it sometimes impacts kids with existing feeding issues quite negatively. Sorry, none of that for us, we were barely hanging on by our fingernails as it was!
The ped GI was very supportive of our decision to wait, as she said it is a very life-changing surgery. So far, I believe we have made the right decision. As I said earlier though, Ethan does not aspirate, which makes the decision far less urgent for us.
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