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Post by sd112170 on Sept 18, 2008 22:35:56 GMT -5
My name is stacy. John was born march 30,2008. My husband and I were aware of our chances( a 1 in5 chance). John blasted into the world. We weren't prepared for the scare of a lifetime. Leukemia!! John was rushed from one hospital to Children's. During that time, we were trying to prepare ourselves, for anything. John went through a round of chemotherapy. He did wonderful. He was so sick after birth, he only soared during the chemo. After the last dose (at home) we went to clinic the following Monday. This has to be where he got RSV. He was only 2 weeks old. We stayed in the hospital for the first month of his life. He is 5 and a half months now. STRONG and EAGER to do everything . Today we officially returned his oxygen and pulse ox monitor. Wow. It is truly a blessing to have this little man in my life. It was tough in the beginning. He is 3 months free of leukemia. I am so thankful for my son. So welcome JOHN!! Thank you for picking us for your parents. I am so honored. Life is good. ;D
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Post by CC on Sept 18, 2008 22:54:33 GMT -5
WOW what a little fighter you have there  So GLAD to hear John is free of leukemia and doing so well. Glad you found Uno and Looking forward to hearing lots more about you and yours  CC ~ From New Jersey |
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Post by jelanismom on Sept 18, 2008 22:58:02 GMT -5
WELCOME to UNOMAS!  How wonderful it is that your son is healthy and strong now after such a rough start. My son almost didn't make it when he was born, and the day I brought him home after 3 months was the happiest day of my life! It's nice to meet you and thankyou for sharing! I look forward to pics of your precious baby. |
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Post by CC on Sept 18, 2008 23:19:40 GMT -5
BUMPING back up so ALL can see |
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Post by Jessie on Sept 19, 2008 3:56:57 GMT -5
Welcome to Unomas!!!!!
Jessie
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Post by Emilysmom on Sept 19, 2008 6:46:30 GMT -5
Welcome to Uno Mas!! We're so glad you found us! Congratulations on the birth of your son. What a roller coaster ride it must have been for the past few months! I'm so happy to hear he's doing so well now. Looking forward to hearing more about him, and about your family.
Susan
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Post by Jackie on Sept 19, 2008 7:05:56 GMT -5
Welcome to Uno Mas. What a roller coaster ride My daughter, Emily, is 28...lives with her oldest sister 500 miles away and just flew alone to Baltimore to visit another sister and go to the NYC Buddy Walk.
Her life was a rollercoaster start too...three surgeries in the first 10 days...and a colostomy bag for her first two years. I bet you are like we were...just NOW starting to get into the nitty gritty of DS which has probably taken a back seat to all the rest of the medical probs. But glad you are now on a more even path.
Jackie
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Post by momofrussell on Sept 19, 2008 7:21:31 GMT -5
WELCOME!!! What a ride right? I am glad you are here and connecting with us!!! We'd love to hear more about your precious baby!!!!! Oh, and congrats on the new baby, by the way! March is a good month, I have two born in March Enjoy the site and post up more when you can! a. |
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Post by damarasmom on Sept 19, 2008 7:49:15 GMT -5
Congrats on your new baby boy! Sounds like he is going to be a strong little boy, with great determination. You have been so blessed!
I'm so glad you found us and hope to hear so much more about your family. Pictures are always welcome.
We have a 4 1/2 yr old daughter with DS and she is so amazing, she surprises us daily!
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Post by Googsmom aka Jennifer on Sept 19, 2008 9:01:16 GMT -5
Welcome to Uno!!! Can't wait to see pic's of you precious boy |
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Post by Valerie on Sept 19, 2008 9:20:30 GMT -5
Welcome Stacy and John! What a little trooper you have there! So glad to hear he's doing better and now you can just enjoy him as a baby and not worry so much about all the medical stuff! ;D
I'm Valerie, my little guy Nicholas is now 5. We've dealt with the medical stuff, too, he had a heart defect, he's had 5 surgeries and 5 years old!
Very nice to get all that behind you and move on to just enjoying being a parent! Congrats!
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Post by jelanismom on Sept 19, 2008 10:43:13 GMT -5
Stacy, You and my son Jelani share the same Birthday...how cool....should you share it together?! lol |
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Post by sandi on Sept 19, 2008 12:36:32 GMT -5
Hi welcome... everyone here is totally awesome, and give great advice. I prefer this group to some other I had belonged to. I am so happy to hear how well John is doing. Hugs.
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Post by laurasnowbird on Sept 19, 2008 17:54:37 GMT -5
Welcome to Uno Mas! You guys must be FLYING with the relief of sending back all the gizmos. I didn't even know it was possible to have leukemia at birth! Your little man is obviously a spunky little fighter. We love hearing about new babies, so share all you want, you can never bore this bunch with baby talk!!!
Laura
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Post by sandi on Sept 19, 2008 21:32:52 GMT -5
Hi Laura, yep, you can get it from birth. Cassie had the "blasts" at birth. In simple terms they told me she had transient leukemia, which would probably go away at around 3 months, which it did. But, it could return as full blown leukemia at age 3-5 years old. I guess we will tackle that if it comes............. sighs.
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Susan, Proud mom of Michael (32), Justin (25) Emily (22ds), and Jordan (20).
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