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Post by CC on Dec 17, 2008 21:45:09 GMT -5
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Post by laurasmom on Dec 17, 2008 22:02:14 GMT -5
This was beautiful, very thought provoking also. I loved how she changed the meaning of a special needs parent, a very true fact, speaking for myself, I can say I am a parent with special needs. I guess that is why our local support group, and my online groups, Uno Mas, are so important to me, those special needs are met.
Can't wait to pass this on, thanks CC
Sharon
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Post by sd112170 on Dec 17, 2008 23:48:22 GMT -5
Sharon, You said it perfect. That song was beautiful. I don't know what I would do if I hadn't found UNO!!
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Post by Googsmom aka Jennifer on Dec 18, 2008 9:38:56 GMT -5
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Post by Jackie on Dec 18, 2008 11:13:53 GMT -5
I like the song. We ARE parents with special needs. Everyone refers to our kids as having special needs but forget about us their parents in the equation. We will be Life Managers for our kids their entire life...no matter how independent we deem them to be. There will always be that part of us that will never be sure we have done enough or have planned enough no matter what we do.
As a mom of 4 grown kids...some with their OWN kids...I know you never stop thinking about them as "kids" but with Emily it is a bit different and I realize that her happiness and well being will always rest with someone else needing to be in her life. I doubt that any of my friends think about this in regard to me. I usually paint a pretty positive picture of her and her life for them so they never really see inside. I would like to be better at conveying MY needs in all this to them but have never been that good at it.
This reminds me of a poignant moment I had years ago with my mother in law. My father in law was blinded in WW2...so Martha never really had the married life that she had envisioned even though they had over 60 wonderful years of marriage. I once told her that I admired her for her courage and her ability to make Leonard appear to have almost no disability by quietly helping him. Bless her heart...she totally came undone and said ...in all those years NOBODY had ever told her that ...that mostly they said..."too bad for Leonard that this had to happen". I think that having a daughter in law who also had to be really responsible for someone with needs gave her a shoulder she never had.
So after listening to this...I want to say to all of you...that we must all realize that WE do indeed have special needs ourselves and we need somehow to convey to our friends that we need and value their support and friendship.
Thanks you for sharing this link.
Jackie
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