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Post by sueb on Jan 26, 2009 13:29:04 GMT -5
Hi Everyone!
I'm still working on uploading a pic of Milly - I just have to set up a web-based photo collection.
Do any of you have challenges with toiletting related to your child being confused about the "signals" for pee and poop? Milly sometimes stores up her pee for hours, and, especially when she also needs to poop, becomes very irritable, and I believe, confused, about all the sensations she feels. (she is essentially non-verbal, so cannot tell me what is bothering her). She also has sensory challenges partly due to her autistic diagnosis.
When I suggest she go to the bathroom (she understands what I am asking), she avoids it like the plague, and often has a total "meltdown".
Once she is calm enough, she will go the bathroom and pee or poop, but until then, we have this period of restlessness and discomfort.
Is what I am describing familiar to anyone, any methods/techniques that I may use to help her? Would love any input or ideas.
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Post by CC on Jan 28, 2009 22:48:59 GMT -5
Just wanted to say I read your post and sadly have no input as we have not had to deal with this issue but I read and wish you tons of luck and hope someone here can pass on some advise  CC ~ |
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Post by sueb on Jan 30, 2009 13:00:21 GMT -5
Just wanted to say I read your post and sadly have no input as we have not had to deal with this issue but I read and wish you tons of luck and hope someone here can pass on some advise CC ~ thanks, CC. I'll do some research as well, and share any info I get. It's hard to know how much is sensory, and how much her cognitive delay. |
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Post by wrblack on Jan 30, 2009 14:15:39 GMT -5
Yeah, we're somewhere in the same neighborhood. Charlie is 9 years old, non-verbal, and autistic. And not potty trained.
They started him on a 30 minute schedule at school a couple of years ago. So, we tried to cooperate somewhat at home, but not nearly as ambitious as teachers and aides.
Then again, he sometimes comes home from school wearing his change of clothes. And we don't have those sorts of accidents at home.
I don't think Charlie wants me to go into too many details on a public forum. And I don't think people reading this forum want all the graphic details, can get kinda messy.
But a couple of quick, unrelated, mostly, points. I thought about mentioning to Lynn the other evening that I wished I had somebody to rub my back when I needed to poop.
And Miralax is a miracle drug. We started Robert on it when he was having slight rectal tears from large bulky stools. For years Charlie seemed to prefer to poop every other day. We thought, good for Robert, let's see what Charlie thinks. Both boys are now on sort of a half dose a day, and a couple of regular little guys they are. Miralax has made life easier and neater for all parties concerned.
At school, this year they came up with some special steps so Charlie can put himself on the toilet. At home, we still direct and help him to the toilet. If we put him on the potty, and he needs to pee or poop, he will do so. But we have made no progress in him communicating to us when he needs to go. And that's one of the reasons he's still in diapers or pullups.
Just our experience,
Bob
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Post by sueb on Jan 30, 2009 16:21:07 GMT -5
Hi Bob: thanks so much to you and to Charlie for sharing this very personal info - it all helps. Milly takes Peg 1250 (we see a gastroenterologist regularly), she's always be constipated. Keeps her stools soft, plus we add fibre daily; but, and it's a big but, she has a major problem with intestinal gas; due to her not chewing her food properly (just wolfs everything down, we really have to supervise her), plus just swallows a lot of air. She did much better with toilet training in elementary school than in high school (her "autistic" challenges seemed to multply when she went through puberty, I've heard that happens often, hormone changes? perhaps effects of long-term use of Risperdal??? Just questions, we're weaning her off the risperal right now. I've heard of a book that deals specifically with toilet-training the child with autism, I should look for that.
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Post by jmom on Jan 30, 2009 18:03:51 GMT -5
My son (Josiah) is 5 years old with down syndrome. He is partially potty trained, he will pee but not poop. He does not have any constipation problems. He is non verbal, however I feel he understands he is suppose to poop in the potty and not in his clothes. But he will not go...so is this common amongst our children???
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