|
Post by victoriasdad on Mar 13, 2008 1:28:38 GMT -5
WHERES THE PICTURES? ? LOLOL welcome , welcome, ;D im one of the few dads on here, makes me special you just joined the biggest family in the world,,,,,,,welcome aboard
|
|
|
Post by victoriasdad on Mar 5, 2008 2:16:55 GMT -5
hey dnt delete those old accounts its a marker of how much uno has affected and helped the lives of families touched by ds, think of the contributions those people made, the laughs and the giggles they shared and of course the tears and the hugs, lol you ever go to the nicu and look at thse pictures of the babies when they were born and the pics when they are six or seven or ten or fourteen, i wonder what happens to those pictures,,, what a wnderful tapestry of the human condition, all the fear and hope, love and anger, courage and cowardice rolled into one big collage, d**n i shoud write a book, naw.......... i would just eat the crayons again.....
|
|
|
Post by victoriasdad on Feb 29, 2008 21:53:45 GMT -5
okay, if the artist truly made that from her heart i wont criticize that doll, except; where is the joy, where is the wonder, if that baby had downs he would have a smile on his face, his hands would be into something, this is more a reflection of the pain the artist feels, so i wouldnt make fun of her attempt to show her feelings, but wy is she selling it, we like dolls to love them , not pity them, i think that doll may be related to chucky,
|
|
|
Post by victoriasdad on Feb 29, 2008 2:14:53 GMT -5
victoria is eight, i still grieve for the could of beens and the would of beens, it doesnt make me a smaller person or a poor father, i love victoria with all my heart, when i first found downsyn.com i would read the posts and i would cry, and cry, personally i will always grieve, later when i found uno mas i knew i found my home, , it really feels like we are all family, i feel despair sometimes fear, and fustration, and when i cry victoria will come up behind me and she will pat me on the back and tell me "it tay daddy, it tay, " when we learned victoria has ds i named her victoria, it means victory because i knew in my heart as scared as i was, as devasted as i was , i knew that her life would be a victory , what ever life has in store for us we would win in the end. , ive never been embarrassed about victoria, actually, wait till someone stares at your baby in a negative way and you stand up and ask them what the f.... are they staring at? that will happen once in a while,, but you knw what happens most of the time?, almost every time youre in public, people , strangers, they will walk up to you and look at your baby, and smile and tell you how beautiful your baby is,,, and then they will relate to you some one they know with downs or someone they know that has a baby with downs, and wait till youre in public when the baby is older and how he-she will run up to strangers and hug them, and watch the peoples faces as some of them for the first time in their lives get pure,unshelfish,innocent love, you will be proud of your child 99.9% of the time and embarrassed01% of the time, you really cant say that about our typical children, its kinda late here and im rambling somewhat, but what im trying to say is give it some time, most of what your worried about will just evaporate before you know it, we arent trying to pump sunshine up your wazzoie, things are sometimes going to be tough, but you have the support of the biggest, warmest, lovingiest (is that a word?) family in the world, where people you dont know will stop and hug you in the store, it might now be the best world possible, but sometimes its d**n close..............
|
|
|
Post by victoriasdad on Feb 29, 2008 22:15:02 GMT -5
hi from victoria and me, its gonna be great youll see
|
|
|
Post by victoriasdad on Feb 29, 2008 22:03:23 GMT -5
i know this isnt by an artist with down syndrome but what about that print of the angel with dwn syndrome,
|
|
|
survey
Feb 22, 2008 2:12:07 GMT -5
Post by victoriasdad on Feb 22, 2008 2:12:07 GMT -5
i dint assume kids would be mean to victoria because she has ds , on the contrary i assumed kids would be nice to her because she has ds.. i was disabused of my fantasy by another parent that related the horrible time her daughter had in school, also anyone that truly believes that retard means stupid is ............ well ...... retarded in the truest sense of the word.. which is held back,, to retard ....
|
|
|
survey
Feb 20, 2008 23:19:28 GMT -5
Post by victoriasdad on Feb 20, 2008 23:19:28 GMT -5
this is what one mother wrote to me, i guess i was living in a fantasy world, i had never heard of anyone being mean to one of our kids in school, "kids can be evil. poor jessica has been tortured by so many kids. she does have a few friends, but as she gets older in school the kids get more and more cruel. we've had boys getting her to pull her shirt up, kids telling her to lick dirty paint brushes, kids telling her they'd be her boyfriend if she ate some jalapenos, kids taking her stuff away from her and making her cry. so no the kids at school don't "rally around" the kids with downs. most kids at jessica's school are only nice to her because they fear getting in trouble (the last kid that was mean to her got suspended for three days).
this may sound shallow, but the best thing you can do for your kid in school is make sure there is as little as possible to pick on. they have to dress perfect, look perfect, have the best school supplies, the coolest shoes etc... kids are materialistic little punks and all they care about is image. if a kid has something that's cool they'll rally around them.
i've found that the majority of the kids that are really and truly nice to jessica are the ones from our church. i guess it's cause they're used to seeing kids that are different and they know that God isn't pleased when kids are cruel to each other. "
|
|
|
survey
Feb 20, 2008 22:04:05 GMT -5
Post by victoriasdad on Feb 20, 2008 22:04:05 GMT -5
we were talking on another board about the treatment of our kids by typical kids in school, how many people feel that their children (with d.s.) are picked on, or abused by typical kids at school, and if so how did u deal with the situation? what support did u get from the school, teachers principal ect...? was it grudgenyly given or do u believe the support was given because they truly wanted to fix the problem also, does anyone have any ideas on how to get the schools to view the term retard as a hate word and ban its use in all schools, maybe someone can make a form letter or email that we can all copy and send to the school boards, administrators ect..
|
|
|
Post by victoriasdad on Feb 10, 2008 23:39:24 GMT -5
wow, u think if i took victoria to the humane society for the night that she would be obedient when she got home,,, jeez if i had known that earlier things would of been lots simpler!!!
|
|
|
Post by victoriasdad on Jan 30, 2008 22:42:54 GMT -5
victorias the same way , she loves to hug people, how come it only takes one dumba.. to cancel out all the love and good things people share with our children,,, as for victoria runnin off and grabbin a new family,, i usually let her , i figure shes just spreading love where ever she goes and i figure most people need all they can get....... of course i go gather her up and apologize but they never seem to mind.......... btw some people are afraid of children too,, we dont really know what his problem was but it looks like we re pretty sure he was an a hole lololol
|
|
|
Post by victoriasdad on Jan 18, 2008 23:54:14 GMT -5
how about pop sickles?
|
|
|
Post by victoriasdad on Jan 13, 2008 16:08:36 GMT -5
my wife works the idaho state school and hospital, it is where people with mental retardation or brain trauma live, my wife had one of her teeth kicked out of her mouth with a resident having a siezure, she has been bitten , punched, her hair pulled, they are trained to extracate themselves from these situations.. anyone, no matter how long they have worked there or how much experience they have , who assaults even to defend themselves a resident are instantly fired. period, no questions ....... if your child were having an eptilectic sic siezure and kicked a school staff would she be then be able to defend her self by hitting your child? besides hitting her in the face, is that spose to teach her to hit people in the face,, socrates said hitting someone that hits u is just reinforcing their arguement........ (their arguement being that violence solves problems) tell us who to write and we will sign a petition, or what ever , or give us the address to the local newspaper and t.v stations and we will make such a ruckus , that prosecuter will to learn something about people with disabilities and their parent for that matter
|
|
|
Post by victoriasdad on Jan 8, 2008 0:45:47 GMT -5
man it makes me laugh, people have trained their minds to see caps as aggression, come on , CAPS ARE NOT YELLING FOLKS! they are just capital letters ettiquite spettiquite , wy does some one always have to make rules about everything, lol p.c on my p.c i guess, i am a online gamer and its so funny when u use caps how people react ,, it makes them defensive, and finally they will yell(use caps) ENOUGH WITH THE CAPS!! i just think its funny how people can teach their brains to enterpret(sic) caps as yelling or aggression,,, when ur driving down the road and looking at the street signs do u think they are yelling at u? they are all in caps u know? is that wy brand names are always in caps,, are they screaming at u to buy them....just kinda funny...............
|
|
|
Post by victoriasdad on Jan 8, 2008 0:51:11 GMT -5
i found some very good gps alarms for kids they are called guardianangel they have different models one u punch in the gps stats for ur location and when the person reaches the boundaries set in it an alarm goes off, another one u wear half of the device and the person wears the other and when they get farther than the limit u set alarms goes off, there is one for ur spouse to that tracks your spouse, and records all the stops eh/she makes all day , a veritable stalkers delight , that one anyway i dont have the websight , but i found it by typing guardianangel in the search engine, i thought some of them were like 35.00 and up ....... while were on subject, victoria got away at five am one morning wandered down to the nursing home down the road,, i got a call from the chief of police, two weeks later she got away from the cheerleading coach at the high school,,,,, police found her(shes six btw)they turned me over to the child protection agency.......... i got a visit they inspected my house, alarms, bells ect ect...... finally i asked him wy he dint go down to the school and inspect it and the teacher that let her get away,,,,,,,,, he was never told she got away from the school............. the other day victoria got up and went to go to the bathroom ,, she never came back (again five am) so i finally get up and go look for her, i find her , she has pushed the stool up to the door and is reaching for the latch at the top of the door(not quite tall enough yet give her six months) i march her little hiney back to bed.......... i dont sleep much............
|
|