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Post by momofjordan on May 21, 2004 18:00:55 GMT -5
Have any of your little people had to have their tonsils or adnoids out? If so how old were they and what was it like afterwards? Jordan's tonsils are HUGE and we are going in for sleep study soon... Just trying to prepare... Thanks
Rene and Jordan
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Post by PaigesMom on May 22, 2004 9:00:43 GMT -5
Paige had her tonsils and adnoids out last November, she was exactly 3 1/2 - prior to that she had apnea episodes, thrashed at night, snored like crazy, had recurrent/chronic sinus infections and throat infections.
I was worried about the surgery - afterwards it was about a full 2 weeks recovery period - about 3-4 weeks until she was totally herself again. It was the BEST THING I ever did for her.
She has not had a sinus infection since and sleeps so quiet I find myself going in to check her breathing, additionally, she doesnt choke and gag on her drinks anymore and her speech has improved - clarity- alot!!!
Good luck.
Debbie
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Post by vicki on May 22, 2004 18:09:42 GMT -5
Kyle is 18 months now. He is scheduled to have his tonsils and adnoids and some sort of laser surgery on his voice box(June 14). They are going to do a scope first before the laser surgery. He is going to U of M.
vicki
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Post by justinsmom on May 22, 2004 19:34:46 GMT -5
Justin had the T/A when he was 2 and did great, he was back to himself the next day. His sleep improved along with decreased sinus and upper respiratory stuff.
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Post by didmyheartgood on May 22, 2004 23:13:22 GMT -5
Hey Rene,
Brace had his T/A out when he was almost 4. The surgery was quick and he was home within a couple of hours. Recovery time was about 2 days. We had a little trouble getting him to drink like he should have. His throat was just so sore, he refused to drink. Brace doesn't do popsicles or jello either.............I had to squirt liquids in him with a syringe for the first 24 hours, then he was fine.
Brace no longer has apnea issues, the snoring is gone and he can sleep with his head in a normal position now. He used to sleep with it all the way back to open his airway....He has also had fewer URI's.....
Hope things go easy for you, as well. Kim
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Post by AnnieC on May 23, 2004 12:00:24 GMT -5
Raven had her T&A at 2 years old. She was fine by the next day. Made a really big difference in her sleeping & sinuses.  Good luck! |
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Post by Danielle on May 23, 2004 20:04:10 GMT -5
I was just going on tonight to look up info on this subject...and there it is!! We're also likely going to need this done - Zane sleeps with his head way back all the time (sometimes I catch him sitting up, too) and I think I hear apnea, where he wakes himself up with a weird sound every few hours. His T's or A's (not sure which) are HUGE....I'm actually calling his ENT about this tomorrow. My big concern is speech because his pediatrician said the T&A procedure can cause problems with speech but she didn't elaborate. (And I didn't think to ask) What kind of problems? Anyone experience further delays or anything like that?  |
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Post by Claire on May 23, 2004 22:13:48 GMT -5
Adam had his tonsils and adnoids out when he was 2 years old. A sleep study showed he had extreme sleep apnea.  During one night he had 53 spells. 6 were central apnea (which we can't do anything about), and the others were due to obstructive apnea. His oxygen levels really dropped for some of them. His tonsils were too big and he was also born with a tracheal stenosis which didn't help things. Everything went well for the surgery. He started eating ice-cream on the same day.  He was refusing popsicles. :DThey kept him in the hospital for 3 days because we lived so far away, but he has been fine since. I found that the 4th day was the worst, it was like the stitches had all dried up and he seemed really uncomfortable. Hope this helps you. |
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Post by didmyheartgood on May 23, 2004 22:59:45 GMT -5
Danielle, I'm adding this in. Brace's speech actually improved after having his T/A surgery. I'm not sure why. My guess is because he rested better not having to struggle to breathe at night. He worked better during his speech sesssions, was not as congested all the time and just felt better all the way around. That is my guess. I don't know if the enlarged tonsils and adnoids have a direct link to delayed speech, or the removal of them, I guess I should say...I just know Brace improved greatly after having it done. Hope the same goes for you!  Kim |
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Post by justinsmom on May 24, 2004 12:13:30 GMT -5
The only speech problem I have seen is with the neighbor girl (non DS), she talks nasally, her ped said that can happen if too much of the adnoids are removed. So prior to Justins' T/A I spoke with his ENT and she assured us that she was only removing what needed to removed and after the surgery I again asked her about the adnoids and she said she only removed portion that was causing the problem. We have had no problems as far as his speech in fact he seemed to do better afterwards along with the tubes.
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Post by wrblack on May 24, 2004 12:54:57 GMT -5
Haven't been there yet, though ENT's all say, as soon as they look down Charlie's throat, "My, what big tonsils you have." But thought I would mention here that I believe Dr. Leshin thinks most kids with Ds should be kept overnight for observation when having a T&A. From www.ds-health.com/apnea.htm << .... One final note about adenotonsillectomies in children with DS: this should not be considered day surgery. Studies have shown that after T&A's, children with DS have longer periods of decreased oxygenation and a slower time to recovery.>> |
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Post by steffipoo on May 24, 2004 15:22:27 GMT -5
HI!!!
My girl Olivia had her t and a at 4. Afterwards in the recovery room she cried for me they got me and she started talking with a bit of a raspy voice but man still talking. She is not nasally sounding either. Some do say after t and a your voice pitch is more nasally but Livs didn't turn out that way.Also the child wanted to eat right afterwards.LOL My little piggy. It took her 2 full weeks to completely recover.Also they kept her overnight. The way the ENT did it was different though as Olivias insurance would NOT pay for an overnight stay. SO... after the surgery the ENT saw Liv an hours afterwards. She THEN changed Olivias stay from outpatient to overnight.Used 02 sats being low as the excuse for an overnight stay. I would HIGHLY HIGHLY recommend you stay overnight. Olivias sats were good after the surgery(lets just say the ent fudged a bit with the insurance .her intention the whole time was to have Olivia stay overnight and this was the only way)BUT the night after her surgery we were actually really happy they did fudge cause Livs sats went way low the first night and was monitored very carefully.GOOD LUCK and the sleeping thing I usta find Liv sitting up leaning against her bed ALL the time. She usta sleep with her head way back due to an obstruction and reflux as well.The sleep study6 will tell you a lot. As a matter of fact my girl goes in in a month for her next sleep study!!!!
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Post by amyzimoski on May 26, 2004 9:35:05 GMT -5
Natalie had her tonsils and adnoids out this year and man o man did it make a difference! She no longer has sleep apnea, she doesn't snore, and her speach and sinus problems are gone! She speaks clearer and hasn't been sick since! She recovered very quickly and was eating a popsickle before we left the hospital. You would have never known she had surgery. She was up and running around that same day! It was one of the best things we did! Good luck!
Amy & Natalie
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jackie
During one night he had 53 spells. 6 were central apnea (which we can't do anything about), 
He was refusing popsicles. :DThey kept him in the hospital for 3 days because we lived so far away, but he has been fine since. I found that the 4th day was the worst, it was like the stitches had all dried up and he seemed really uncomfortable. Hope this helps you.
Kim 