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chat?
Jun 4, 2004 16:44:53 GMT -5
Post by Debby on Jun 4, 2004 16:44:53 GMT -5
Hi Laurie, I would love to "chat" with you. Not sure of how to do it though since I am new at this. It is Sundays and Thursdays after 9pm? correct? I will try you this Sunday okay? Debby P.S. how old is your daughter and who are her siblings. How is she doing? You?
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Post by Debby on Jun 3, 2004 16:48:13 GMT -5
Just to clarify...they do fill the IFSP all out for me, but their goals are so vague that it doesn't help get services at all. So I am attempting to clarify the goals so that they must make "reasonable progress" toward them. THanks LaurieT
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Post by Debby on Jun 3, 2004 15:00:14 GMT -5
Dear Uno Mas Friends, I am glad I can at least talk to you! I must admit today is one day I probably shouldn't be sharing with anyone! I am very upset! But here goes... I have another IFSP today...this is three in three months. It has been very difficult for me and I know now to get help...but today is the day. I am using so much of what all of you have shared with me about Speech, the IDEA guidelines...especially about how they must help the family...and my old IFSP. Please help me if you can asap to set some new goals for Keeran. He will be 1 year in July. He is just now sitting up independently and he self feeds but most of it ends up on the floor. He does some communication, but mostly just complaining. He is just beginning to use the pincer grasp. I am at a loss and feel pretty discouraged right now about how to write out these goals. I thought they (EI) were going to help me do this and so far...it hasn't been the case. I have completely lost my trust in them and could really use some prayer today and help. Thanks whoever can chime in ! Debby
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Post by Debby on May 28, 2004 19:00:18 GMT -5
It is hard to know what to say when so many bad things are going on, but I know someone to listen to you is one of the best things to have. Sometimes we won't have any answers to our questions or problems, but a friend can sure be a help. Even for you to hear the answers to your email to Unomas I am sure was helpful to you. But even better is prayer. I have two verses I think of every day. One is Psalm 103:1-5...Bless the Lord, O my soul, and forget not all His benefits..... There is ONE who can help your step daughter in her situation and lift her up, and always be with her. It is the Lord and by prayer you can help her greatly, and yourself as well, to have peace. The SECOND is Philippians 4:16-17 Be anxious for nothing, but in everything but prayer and supplication with thanksgiving TEXT and the peace of God which surpasses all comprehension, will guard your heart and mind in Christ Jesus. Praying she will discover in the valley, the PRINCE OF PEACE. Pebbles
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Post by Debby on May 28, 2004 19:39:50 GMT -5
Hi Laura, Thanks for your email. I recently found that my insurance will cover nothing for therapy unless it is due to an accident, or deemed "medically necessary". My ped is working with me on this one. She referred us to a major hospital in the area who are the best of the best for an eval. ...problem is even if they see it as "medically necessary..maybe because of feeding?, my insurance still only pays for the first 60 days of therapy. In this hospital, all the services are mucco bucks!! So... I feel like I am back to the fight for state services with EI. After our last IFSP I sent an email to the case manager and stated that we were not happy with the IFSP that was proposed and so he scheduled ANOTHER IFSP and of course he scheduled it on our therapy day and time. Anyway, we directly suggested we want another case manager who will be working for the services Keeran needs, namely speech. We also stated that the agreement we made for 45 min every other week for OT and 45 minutes every other week for PT was our bare minimum. With all the vacation times, and sick days, it is not enough...so now another meeing is coming up soon...this next Thursday June 3rd. I will look at all your suggestions and would really appreicate anything you think of that will help us get more services for Keeran since now we know private help is not going to be an option because our insurance is so bad. If you can email me directly, that would be great, as you have time. Thanks so much, Pebbles.
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Post by Debby on May 24, 2004 18:43:11 GMT -5
;)Hello! I hope you don't mind me bending your ear today. I am a new mom of Keeran. He is 10 months old. I have been fighting for services for him for sometime now. I am trying to get some speech and it seems our EI doesn't want to give it to him until he is 3 years old and in a group setting. They say that the OT can do pre-speech kind of things until then and that is all he needs. I feel very frustrated since I have heard from many of you all the kinds of ST you got for your children even at 1 month. I spoke to our case manager about it and now he has scheduled another IFSP for next week. Laura and others, can you help me out here. I am really growing weary. Do I just quit this fight? Can you help me know how to get this? Please advise! Also, if there is some other source or means to get some more help for Keeran I would appreciate it. Can I go through some other non profit or something? Right now he only has therapy 1x a week for 45 minutes. I know he needs me and our family and all we do with him...which is plenty, but I know he needs what I can't give him, unless I become a therapist and I have a fulltime mommy and teacher job already. Thanks for any info you can give on this. Pebbles in OREGON
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Post by Debby on May 18, 2004 18:53:03 GMT -5
Hi, My son is 10 months now and also had this same dilema. I can't tell you how funny it was at times when he would grunt loudly while I did bicycle steps to help him get it out! But at the same time, it was painful and I wanted to find help quick. My ped prescribed lactulose, and I used it in his food each day. I also breast fed and his poo never looked like a breast fed babies. Also I did try to get prune juice down him to no avail, but he liked pear juice. Then after some time, it seemed his system adjusted...but also I feed him not as much cereal, or binding things. Mostly veggies, yogurt, some crackers and such fruit ( not bananas or apples). Now he seems to be doing okay. Also we massaged his tummy at times to help him and gave warm baths to relax him and that helped too. Hope it goes well. Love to hear more about your child since so close in age to mine! Debby
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Post by Debby on May 18, 2004 18:46:09 GMT -5
Hi, I hope you don't mind me chiming in here, but Lori Overland was the gal who just had the seminar I was hoping to go to. Now I am so mad I didn't do it. It was in Seattle through the Hearing, Speech and Deafness Center. See Speech@hsdc.org. The seminar was called Oral Motor and Feeding skills in the Down Syndrome Population. I hope your appointment goes well. Still fighting for speech in Portland. (Pebbles)
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Post by Debby on May 18, 2004 18:27:39 GMT -5
Wow! you guys are amazing. I am so thrilled with all of you! I can't tell you how supported and understood I feel today. Finally, I feel like there are some people out there who understand my life. Thank you so much! I will incorporate all the tips into my days for Keeran. And will check out the video and book mentioned too. I did ask my Ped to write a prescription for ST, also we are trying to go through our insurance for the rest, also TEXT
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Post by Debby on May 18, 2004 18:27:03 GMT -5
Wow! you guys are amazing. I am so thrilled with all of you! I can't tell you how supported and understood I feel today. Finally, I feel like there are some people out there who understand my life. Thank you so much! I will incorporate all the tips into my days for Keeran. And will check out the video and book mentioned too. I did ask my Ped to write a prescription for ST, also we are trying to go through our insurance for the rest, also TEXT
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Post by Debby on May 16, 2004 17:58:24 GMT -5
Hi everyone. Thank you so much for all your input about speech therapy for under 1 yr old. I am so thankful for all the advice and suggestions. I especially appreciate it since it comes from all of you. I must say the things you shared were more helpful than anything I have gotten anywhere! I am currently in a dispute with our EI case manager/sp ed teacher about speech. We are also trying to get it through our ped. Praying we may possibly even go to a great place that is private through our insurance.
Any other details about therapy for your children would be so appreciated. Right now Keeran is 10 months are is just now sitting up independently and sort of scooting. He doesn't use the pincer grasp yet. And he doesn't babble at all. He has an open mouth position most of the time and drools alot. Any more ideas are greatly appreciated. also suggestions for working with EI that insist Keeran doesn't need speech until he is two? How did you fight for your services if you needed to? Blessings. Pebbles
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Post by Debby on May 16, 2004 17:41:35 GMT -5
Hi there! I am also a new member to unomaas, but not to homeschooling. I have been homeschooling for about 6 years now and just this year added my son Keeran, who is now 10 months old! Wow, time flies! Anyway, I homeschool two older girls...9 and 7 and I also have a toddler at home. Am I crazy? Almost! Anyway, I totally love homeschooling, though at times I do struggle with the issue of no private time...but I do love all the time I get with my kids...to talk...listen...cuddle and know them. If you are interested in it, check it out. There are lots and lots of us doing it. The curriculum I have been using since the start is called Sonlight. They even have a special challenges forum on their web site with lots of moms who homeschool learning challenges kids. Also there is a website called NATTHAN.com that is for moms who homeschool developementally delayed children. In our family we do have lots of social interaction, the only problem is the time it takes to arrange play dates and time for play. We are very busy with our little ones and manageing our home and family. My older girls are involved in ballet, softball, drama, church,horseback riding, art, lots of field trips. So there are lots of options. I hope to homeschool my new son one day as the Lord leads. He is a gem, and it would be hard to have him gone all day without me to see his victories and joys. Consider it. If you have any more questions I would be happy to tell you what I have learned. Debby, momtoKEERAN
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Post by Debby on May 11, 2004 23:26:46 GMT -5
He is adorable dad! Thanks for sharing him with us! Looks like he has a pretty cool tub there too! Debby
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Post by Debby on May 11, 2004 23:43:49 GMT -5
TEXTTEXTWow! thanks to all of you for your input on this question. I am so thankful for unomaas! Some great news is, I talked to my ped about my frustrations with his therapy since we began. She is going to refer him to a great program here in Oregon. I am just praying all works out for our insurance to pay for it without any trouble. I will let you know. Meantime I sent an email to the Case manager and told him I wanted more appointments and speech now. Haven't heard back yet, so we'll see. When it gets sort of difficult, I just bring my husband on board, he can negociate anything!! Thanks again so much! By the way as a new thread...how about food?! I was feeding baby food and when in a hurry could just shovel it in, now I am trying just table food and it isn't going too good. He is quite picky I am finding about that. Also I am trying to be very careful about what I feed Keeran. Trying to keep away from sugar and salt, stick with Fruits and veggies and whole grains. Any ideas on foods your kids have liked that are healthy? How do you feed it to them. Keeran does self feed, but it depends on what I am feeding him. thanks again, Debby
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Post by Debby on May 6, 2004 0:07:16 GMT -5
[shadow=red,left,300]TEXT[/shadow]TEXT Curious what kind of things do your speech therapists do with your DS children under 1 yr old. I have only seen one once and it wasn't too helpful. Also my OT does mostly Gross motor stuff. We just now are trying out an open cup for Keeran. Did you all start with a straw and when. Did you have speech before 1 year? What kind of things did you do? I am considering going to a seminar myself on feeding issues related to speech held in Seattle this week. Anyone hear of it? Debby
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