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Post by sugarbabymarlena on Aug 20, 2009 10:53:31 GMT -5
1. I think that the news is instilling fear in people making the ressission even worse! 2. I think I am shrinking! I was at one point 5'11" but now I am a sorry 5'9"! 3. Since Ive married Fernando I can cook a mean mexican dish, better than any resturant Ive been to. 4. I dont really look in the mirror, so if I look jacked up now you know why! 6. I do prefer text messages over talking on the phone! its much easier to answer your questions on my own time! 7. I HATE ELEVATORS!, i avoid them whenever possible! 8. I do not follow the food pyramid, dont judge! 9. I bought my car, with no cosigners! 10. I want a dog/puppy, but Fernando is allergic . 11. I want to go to college to someday be a pediatric nurse! 12. I dont like pickles,onions and tomatoes on my burgers, and hold the mustard! 13. I have two tattoos, i now hate them both. 14. I really have nothing in common with Fernando, I know sad right? 15. I am afraid of armagedon! 16. I wish i was a size 7-11. 17. I voted for Obama! 18. I like em tall, dark (some cases very dark) n easy on the eyes! 19. I wish all kids evolved to have a feeding tube! 20. I can not stand techno music, gives me panic attacks! 21. No matter how bad my day gets, Marlena always does something silly and makes me happy! 22. I HATE milk that is not next to frozen! Not like ice cubes in it,but that cold! 23. I will not drink a soda that is not cold! 24. I just recently started popping my knuckles cause the physical therapist says there is no study proving that doing so would give you arthritis! 25. I think that my best quality is that i can make a freind with anyone!
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Post by sugarbabymarlena on Jun 17, 2009 12:25:50 GMT -5
SPEECHLESS! PRAYERS!!!!!!!!!!
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Post by sugarbabymarlena on Jun 17, 2009 12:14:58 GMT -5
HAHA, What a clever girl! Hope she never notices that she is "differnt".... hope you never have to explain why!! I am still trying to explain to my eldest step son (10) how Ds is special and he isnt quite getting it. Im just gonna stop trying tho... hell figure it out 1 day.
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Post by sugarbabymarlena on Jun 17, 2009 12:10:11 GMT -5
We are working on this same thing with marlena! she has the same blank expression before she grabbs both... and i say oh you want both??? and let her have them. do you wanna drink or eat??? she obviously wants 1 or the other n so i make my hubby come and point at the one she is looking @ and he gets a drink or a bite.... never works but i think if we lead by example.... adventually she will get there.... On that note she doent care what i give her she is so darn content with everything. The blank expression is more like "i dont care" just gimme 1!!!! LOL Keep trying, shell get it!(hopefully marlena does too!)
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Post by sugarbabymarlena on Jun 15, 2009 14:22:19 GMT -5
your not gonna believe this either, our father wouldent do marlenas baptism for the same reason!!!!!!!!!!!!!!! didnt know this was an issue....
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Reunion
Jun 12, 2009 8:47:43 GMT -5
Post by sugarbabymarlena on Jun 12, 2009 8:47:43 GMT -5
I wasnt there at her school10 years ago, but at mine....hehe...Anyways nobody ever really teased the kids like these guys, but they never included them either. We had 1 cool kid that had DS, but his life time friend was his best friend and was like mr cool on the football team. I HATE to think that anybody would get more immature as they aged. On that note some of them may have given birth to a child with DS or a special need! I know of 3 girls in my class alone who has a child w/DS. I think if ne thing those few people(out of 700) would be very protective over her.... I KNOW i would!!! I think it would be nice to know a few of those young parents, to kinda look out for her!!! I hope everything works out.... and i hope my insight might help.... wish i could go with her...!!!! -Lisa
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Post by sugarbabymarlena on Jun 5, 2009 15:50:59 GMT -5
I know right, were right behid yall too, cant believe 2.5 years have gone this quickly, and then they are going to scool.....
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Post by sugarbabymarlena on Jun 5, 2009 15:47:59 GMT -5
OOOOHHH boy, I didnt ever thing of the day Marlena would ask to drive.... lol, guess i have alot i havent really thought of!!!
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Post by sugarbabymarlena on Jun 5, 2009 15:45:35 GMT -5
YAY! sooooo happy, i have a friend whos little guy did good on his surgery! WTG!!!!
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Post by sugarbabymarlena on Jun 5, 2009 15:43:05 GMT -5
I love this 1.... sooo true. thanks!
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Post by sugarbabymarlena on Jun 4, 2009 13:32:54 GMT -5
The problem has always been thin liquids. We see nancy synden and we have spoken to steve a few times (2).Nancy has always been there. We were refered to a pullmanary specalist, forgive me if that was spelled wrong.... a lung specialist. so He/ she is gonna look at the previous chest xrays and this last one! hopefully he can weigh in on the swallow study also. she has a regular ent she sees @ dornbecher, and i guess the prob, is not in her throat as much as it in the suck swallow breeth. when she swallows something, some funny flap either opens or closes prematurely. letting the tail end of the swallow to "penatrate" her air way. Not to worry about the pheumonia, they gave her strong antibios, and she should be great in a few days.........Finally got some sleep!!!!!! this morning! YAY! Thanks every 1 for weighing in! means the world, and someday it will mean the world to a mommy that just cant figure out whats wrong.... you know gives them new ideas! suppose thats the whole purpose....HEHE sleep is getting to my head!
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Post by sugarbabymarlena on Jun 4, 2009 9:21:07 GMT -5
UGH, I can tell you that the aspiration thing is scary! we deal with it.....ongoing!!!! Marlena had the swallow study @ 2 months, and again @ 7 months and had a feeding tube placed @ that point she has had several since. We aloso found she was refluxing, but from then to now the reflux has come and gone several times. Tuesday we took her in for the barking cough better known as croup, and had a chest xray. They found her right lung to have fluid inside, but just a little more than the last chest xray. Pheumonia! darn it!!!! I am exausted! Is there an end to the ugly aspiration? ?? 2 years, On and off thickened liquids,a g tube, lots of feeding specialists...speech therapists. I mean we are used to it now but is there really light at the end of the tunnel like everyone says Any veteran moms with some insight?We are supposed to go see the feeding specialist @ Dornbecher after the pheumonia is well gone for another swallow study, lets all pray that Marlena cooperates better. Gonna have to starve her for like 15 hours to get her to drink that barrium stuff. I think this time I am gonna chug some to make her feel better. ;D Marlena seems to be cool with everything, she hates the croup! Honestly I hate it too, nobody gets any sleep. <-----tired mommy and baby!!!
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Post by sugarbabymarlena on May 25, 2009 1:42:35 GMT -5
I hope nobody thinks you dont care! you sound like a great parent, and well if 10 docs cant pinpoint the problem then the problem is not common enuf for them to diagnose right away, take a break for awhile i say and enjoy your gift, get the pool when you can, bet he will totally dig it! I know i would right now.....{{{sweating}}}
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Post by sugarbabymarlena on May 22, 2009 10:07:15 GMT -5
Oh i forgot to mention, the people you meet, @ therapy centers, doctors, nurses, familys, therapists The people that will always leave a lasting impression, the people you probablly would have never met otherwise, yea totally worth it! Some of the compassion that you just dont see in America anymore!
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Post by sugarbabymarlena on May 22, 2009 9:56:56 GMT -5
I have never felt love like I feel for Marlena. She may only be 2, but she is my best friend! She never stays mad at me too long, she has always been so good, never a tantrum girl, never tells my secrets, always wants to help clean the windows, coffee table, walls...etc. I can be in the kitchen cooking and she is perfactly content shreading the phone book or something like that, I swear for 20 mins or more. She is always perfactly willing to be my shopping partner when my husband refuses to go! She has brought my family closer, in ways we love eachother more than we did before, and thats saying alot! She is a little charmer! people really can't get enuf of her. i think she is going to be a hairstylist! she always is brushing something and she tries like heck to put a clippie in her hair. The best thing ever about Marlena having Ds is that when the stereo types come out of people, she proves them wrong, she shows them that her "disability" is no disability at all, just a differnt ability. She is fabulous! Can't remember life before her! dont want to! I am a better person because of this wonderful blessing God put in my arms 2 years ago! We laugh like crazy about the silly things! I love you Marlena, Thank you God for giving her to me!
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