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Post by sugarbabymarlena on Oct 9, 2009 2:12:02 GMT -5
What an awesome show... certainly just the thing to make me smile! I am now Sams #1 fan! Megan is so mellow! I wanna meet them all! I plan on watching every week!
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Post by sugarbabymarlena on Oct 8, 2009 12:57:56 GMT -5
May 12 2007-October 7th 2009 :'(I cant begin to put into words the most tragic thing happened yesterday.... Our very loved Gideon... he passed away He had massive pullmanary hypertension, among other things. I got the most unexpected call from Marriah yesterday, and I ask once again for our uno mas family to come together and pray for Marriah and her family through this very very sad and most difficult time. I am deeply saddend, and Gideon will always be my hero! I will never forget him and I hope to continue to be very close with Marriah. PS...Marriah when you read this I want you to know that I love you and I will always love our little Gideon, and anytime you want, come to let the tears out or i will come to you! OR come to share the moments that make us smile the most. Lisa
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Post by sugarbabymarlena on Sept 11, 2009 13:16:28 GMT -5
I dont see that marriah updated thus far.... Gideon is still at the hospital, incubated for a breathing tube, they had some kind of conference yesterday, n they are going to put in a treak-tube. For the purpose of breathing. That will be monday or tuesday. To me he looks like his has gained some weight! Which is good because he lost soo much. He is such a cutie pie! I love him like he was my nephew!I wish marriah was my sister! LOL Neways we got like 4 more packages, or should I say letters and something is at my managers office I am assuming its for gideon. Neways marriah has been hanging what he has been getting and rotating because well there is just soooo much! lol thank you again, to see her face light up when I take them to the hospital, warms my heart! lisa
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Post by sugarbabymarlena on Sept 3, 2009 20:52:55 GMT -5
Ok another two packages came today from georgia... God bless you all, going tomorrow to drop them off marriah i guess has posted them all over the room! lol Thank you! lisa
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Post by sugarbabymarlena on Sept 3, 2009 20:50:45 GMT -5
ohhh hunny! Is it possible he is in pain? poor guy I hope he is just mad! barney or sesame street works for us... I just dont know! stay calm though, he needs that from u, a sence of peace! splashy time with a hospital bucket and extra bed liners with warm... cold try anything! lisa
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Post by sugarbabymarlena on Aug 31, 2009 1:38:36 GMT -5
Hey Stacy, Ive read this thread off and on and never could find the right words to say that wasnt already said, but your little john has touched my heart. Id like to see some updated pictures if you have them! he looks so darn cute just wanna Schmooch his little cheeks! wondering if he has any new words?? hope he starts feeling better quick! lisa
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Post by sugarbabymarlena on Aug 31, 2009 1:16:30 GMT -5
Yea! Marriah you came! lol hey i wanna say i recieved two packages yesterday and i wanna bring em to Gid tomorrow... Thank you guys for everything! So glad you could come check this site out.... finally! told u it was awesome! Love you give Gid big kisses for us! Marlena says AH YA YOU! LoL I love you! lisa
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Post by sugarbabymarlena on Aug 28, 2009 10:12:51 GMT -5
come live here! Its the same weather and washingtons restrictions are differnt hubby makes oh $2600mo and marlena is hanging on medically by a thread, but its way higher than 1500... I also know that if you move to Arizona, HOT! they have unconditional healt for special needs, im like you tho, I like it in the NW! did you ever find out if insurance companys will take her with "pre existing conditions"? I ran into this a year ago, but hubby started making less so didnt have to worry so much...
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Post by sugarbabymarlena on Aug 27, 2009 10:13:45 GMT -5
boy: ashton, Andrew (drew), caleb, Emmit, ian, Brett, Girl:adrianne, aliyah, annabelle, gabriella (gabby)<---I love Gabriella! I could go on and on. My hubby is latino and so some of these names i dreamed of before i met him, and cannot put a brett hernandez in the world... lol, you can have it tho!
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Post by sugarbabymarlena on Aug 27, 2009 9:53:55 GMT -5
I like the bob on kids! as long as they do it right, depends on how Lexi feels, the kind that you see Victoria Beckam sport its longer in the front, and well rounded in the back, ive seen some scary immatations tho! good luck!
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Post by sugarbabymarlena on Aug 25, 2009 20:02:16 GMT -5
ohhhh dress up jewlery! my friends 4yr old "cinderella" thinks that costume jewlery is just "wonderful" lol... I got her some sparkily banglet braclets and some head bands that have sparkles... cant go wrong with sparkles! she also got some second hand easter dresses, but she did not care ! they were "beautiful" lol GOOD LUCK!
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Post by sugarbabymarlena on Aug 25, 2009 15:49:15 GMT -5
it all sounds too familliar... The test was actually good, marlena has tubes in her canals, and after they were placed we still could not get a good test. but after sedated abr they said she has perfect hearing... and now she is old enuff to look around for sounds and is proving that her hearing is fine... Hope the best in October!
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Post by sugarbabymarlena on Aug 25, 2009 13:30:30 GMT -5
I am soooo sorry i havent got on the net in a few days... update Gideon seems to go back and forth with his oxygen levels... right now he is on the highest level before they put him on a breating tube. He is an amazing fighter... he has seen a few near experiences and doctors have given up all hope, and miracullasly he comes out and in as little as a week is home!!! so far not this time, but i have my money on him!!! His mom is home sick, or atleast she was Sunday. The responses we got was amazing and i cant wait to bring any and all the cards we can to him! He is @ emmanual but his last name is hard to pronounce let alone spell... his moms name is marriah and she is doing this practially alone with some support from her family and close friends... this is still a surprize to her so thanks so much again! You can se gideon on youtube if you look up down syndrome gideon.... tons and tons of beautiful videos of this fighter! Thanks sooo very much again Lisa
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Post by sugarbabymarlena on Aug 20, 2009 11:38:35 GMT -5
Oh, I only pray that most teachers are like that... Ive heard not so wonderful things in our school district.. but then again My friend who told me these things is not a friendly mom and does not have a child whom people loves to death! Maybe itll be a bit differnt for us... LOL Cant wait to see projects... if she really like doing it perhaps she can make them and sell them on ebay or to me whatever! lol
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Post by sugarbabymarlena on Aug 20, 2009 11:26:01 GMT -5
Ok I just got home from visiting a friend at the hospital, her son has DS and is very sick. He has had 3 surgerys on his blessed little heart. The last one he had a pace maker installed. He is on multiple medications including blood thinners. At 2 years old He is sooo beautiful! To know him is like knowing a class clown ;D ;D... LOL His mom... she is sooo wonderful, so friggin strong! she is funny too, always has a funny story or something. Please pray that the doctors can find a reason for his sickness. They say his heart looks great! His lungs are not so good, and something is attacking his blood cells. They tested for cancer, among other things, and everything has come back negative... Thank GOD! He is still very sick, and I am just praying that they find a answer so they can fix him and they can go home and live a normal life and he can go to school someday and be that class clown! I was wondering... write me a private message if you can get your kiddos to make a picture or a get well card for him and i will take them to them... Ill send an address, that would be awesome! I think it would really cheer my friend up!
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