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Post by Evans Dad on Apr 24, 2006 13:38:59 GMT -5
Hey Jessie
I have some at home.
Email me at swanny297@yahoo.com with some information, how many, and your mailing address. I think the last time I listed them they were $3.25 each and that including shipping. I think I may have about 200-250 left.
Clint
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Post by Evans Dad on Apr 6, 2006 15:20:09 GMT -5
Hey Everyone Well, it has been a long time since I last posted, I have been lurking and keeping up, just haven't posted in a while. Evan has been doing great, he is fully mobile. Funny thing, like everyone else we couldn't wait for him to walk, which took 3 years, now all we want is for him to sit down and quit getting into stuff. He is pretty much at his age level with the exception of speech. He knows enough signs to get what he wants though. We are hoping to start horse therapy with him soon, we have read so much positive stuff about it, that we would like to start Evan. Anyway, just wanted to give a quick update, and a recent picture (don't let the angel in the picture fool yah) Clint
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Post by Evans Dad on Jan 24, 2006 11:35:05 GMT -5
Evan had his AVSD repair done when he was 3 months old. He is now 3, up until this year we had to see the cardiologist twice a year. If he has a good check up in March we will only go once a year. Evan's heart repair was major (they all are), his surgery lasted about 8hrs, so I don't know if it depends on the risk or not, but each checkup the only thing they look at are his SATS and the repair. His current cardiologist said he will follow Evan probably until he is in his early teens - I guess just like any other kind of repair, it is never as good as it would have been if the repair wasn't needed.
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Post by Evans Dad on Dec 26, 2005 18:44:38 GMT -5
Good movie, funny. Jen and I went and saw it Christmas day.
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Post by Evans Dad on Dec 14, 2005 13:20:30 GMT -5
Liz
Sounds very familiar, don't get frustrated. Our son Evan just turned 3 this year, and just within the last week he started walking.
Like your little one, he didn't reach a lot of the milestones we thought he would in the first year. He had open heart surgery, and also eye surgery to fix "cross eyes".
Evan is our only child, but we both work full time as well and at times felt guilty. We have quickly learned that Evan does stuff when he is ready. Therapy does work they just like to show it when they want.
Our first year was pretty tough, but looking back we also learned a lot of stuff about Evan.
Hang in there
Clint
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Post by Evans Dad on Dec 12, 2005 8:57:05 GMT -5
Hey Everyone - thanks for all the birthday wishes.
Remember a time when we all wanted our kids to reach the milestone of walking and running around the house. How we get super excited when it happens, well I guess birthday #3 was it, EVAN IS WALKING - yes he is, all over the place, he is hardly crawling at all.
It is funny we have all of our Christmas stuff out same as last year, "Evan won't be able to get it" wrong, we have re-arranged everything because he get at everything.
Another funny thing Jen and I were talking about last night, is for us we worked hard to get him walking and a little more independent. You always say you can't wait until they start walking around, and then they do and all you want them to do is stop, and quit getting into everything ;D ;D
Anyway just wanted to share, we are very excited and Jen was in tears talking about it last night with her mom. Everything comes to our kids in time, in their own time. Now the next fun step, potty training...
Hope everyone has a Happy Christmas, I know when my Mom from Canada comes down she will be ecstatic to see her grandson running for her at the airport.
Clint
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Post by Evans Dad on Dec 7, 2005 9:40:03 GMT -5
Happy B-day little Man - hard to believe it was 3 yrs ago that I posted on here saying we had had him.
Time flies when your having fun..
Keep him in your thoughts tomorrow, we are going in for his 2nd set of tubes, but this time they will also remove his adenoids. Ear infections, gotta love em.
Clint Dad to Evan 3 YRS OLD TODAY
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Post by Evans Dad on Dec 9, 2005 12:22:19 GMT -5
Bump
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Post by Evans Dad on Dec 7, 2005 9:19:27 GMT -5
Hey Everyone, I have received a small order of car magnets that I have placed on Ebay. I have added the link if you are interested in purchasing any. I know there have been some requests but till now I did not have any on hand. cgi.ebay.com/ws/eBayISAPI.dll?ViewItem&item=6586760755Clint
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Post by Evans Dad on Nov 9, 2005 19:16:03 GMT -5
Hey Everyone Well it has been a while since I posted, we are just getting over our Katrina company so our house is getting back to normal. Hard to believe Evan will turn 3 in a month, seems just like yesterday I ventured here for information. I have been reading a lot of the posts and glad to hear all about everyone's kiddo's. Evan has started walking within the past month or so, and is getting into all kinds of stuff now. He has been very healthy this year, with the exception of a bought of pnemonia (sp). He is eating us out of the house, but still manages to keep the 22lbs steady, wish I had his metabolism. Anyway I will finally have some time to post and keep up with everyone. We took his three year old pictures last week, here is one of the best ones. Take care Clint Swanson
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Post by Evans Dad on Sept 15, 2005 14:03:12 GMT -5
My magnets are the solid blue with the gold lettering - Down Syndrome Awareness written on it. I have a few left on hand, email me at swanny297@yahoo.com for more information.
Unfortunately I sold a bunch to a lady in Texas who re-listed them on Ebay, she is not donating any proceeds to any local group or the NDSS, I have already checked into that. She actually had the nerve to ask to buy more, but when I told her that I knew none of the money was going to a DS group or the NDSS she hung up on me.
Clint
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Post by Evans Dad on Sept 15, 2005 13:55:40 GMT -5
Hey Laurie
The smallest order I can make through my company is a 1000 magnets, if you only need 700 I can keep out 300 and keep them as inventory. I am not sure how quick I can get them, usually it takes a week to 10 days. I have sent you a PM at Uno Mas with the cost information.
Clint
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Post by Evans Dad on Sept 5, 2005 11:23:49 GMT -5
Hey Everyone
I live about 10minutes from Jen in Shreveport. We were not directly affected by hurricane, but we have a lot of refugees stationed here. My wifes family all lived in St. Bernard parish, so between 5 houses we have 40 family members, probably here for a long time. Some have even talked about not even bothering going back, they were just going to start all over in Shreveport, which is great for our family, but devastating for them. Most of them have heard from all of their family and close friends so we are in good spirits.
Keep praying and thinking of the families who are still trapped and waiting for rescue.
Clint
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Post by Evans Dad on Sept 1, 2005 21:11:19 GMT -5
September 1, 2005 Dear Friends: Like all of you, we have been terribly saddened and distressed to see the devastation caused by Hurricane Katrina in Alabama, Louisiana and Mississippi. We share your deep concerns for the many people affected by this tragedy, including individuals with Down syndrome and their families in these areas. We have heard from Karen Scallan from the Down Syndrome Association of Greater New Orleans, who reports that many of their members have lost their homes and are now in Texas, Tennessee, Florida and other locations. She is working to track down people they have not spoken to yet. Karen thanks everyone for their prayers and thoughts! Laura Sherman from the Mobile Area Down Syndrome Support Group is also working to reach out to members in their area who have been displaced by the hurricane, and also expresses her appreciation for everyone's concern. We have reached out to Kim Duffy at the Gulf Coast Down Syndrome Society, but have not heard back from her yet. The National Down Syndrome Society (NDSS) has established the Katrina Fund for the Down Syndrome Community, which will be a temporary fund to raise money for the Down Syndrome Association of Greater New Orleans, the Gulf Coast Down Syndrome Society and the Mobile Area Down Syndrome Support Group. NDSS has made an initial contribution of $3,000 to the fund, and we invite other interested individuals and groups to donate to the fund either online by pasting this link into your browser join.buddywalk.org/site/R?i=Br97iT7-_oL5OcuCOAGMAQ.. or by mailing a check to NDSS at 666 Broadway, 8th Floor, New York, NY 10012. All checks should include "Katrina Fund" on the memo line. The deadline to contribute to the fund is September 30. All monies (100%) collected through the fund will be distributed in October directly to the affiliate groups in Gulfport, New Orleans and Mobile to support local people with Down syndrome and their families. Each affiliate group can decide how to best utilize the funds by giving cash donations to families in need, buying books for children, supporting their local group activities since their Buddy Walks might not take place this year, or anything else that will be the most helpful! We realize that even our most generous contributions will be small in relation to the needs but they will be large with respect to the heart of our community. Whatever the amount, the funds will be distributed in an equitable fashion to the three groups, deferring to their best judgment about how best to use these funds in their respective Down syndrome communities. If you or your group is interested in contributing in other ways (e.g. offering housing for displaced families, sending supplies, etc.), we suggest contacting the affected groups directly. Any offers of assistance for New Orleans can be directed to Karen Scallan (kscallan@cox.net), copying Mike Rapier (DSAGNO@aol.com). We will post updated information about the other groups on www.NDSS.org as it is available. Thank you in advance for opening your hearts to the many members of our Down syndrome family who are facing unbelievable hardships as a result of Hurricane Katrina. Sincerely, Pam van der Lee Alan P. Brownstein Chair, NDSS Board of Directors President, NDSS
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Post by Evans Dad on Sept 1, 2005 16:41:18 GMT -5
Quick Note I just spoke with the NDSS and they are setting up a donation site through the main page. I am not sure when it will be ready, but they are going to start the pot with $3000.00. The link will be available at www.ndss.org sometime today or tomorrow. Any money that our group has received through paypal will automatically be donated into the NDSS site. Keep them in your prayers Clint
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