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Post by Kristen on Nov 2, 2005 16:20:47 GMT -5
SOme people are just a bit worse than others. I am sorry she was like that! I have personally found after more than one awkward time in class (I am in nursing school - just finished OB, on to peds, you know it will come up in those situations) to say the first night hi i'm blah etc. and I have two kids blah, blah, blah and hey, my son has DS, so when the topic or a related one comes up, I am happy to answer questions or give a perspective from the receiving end of healthcare with a special needs child. I am in a cohort of 11 and the obviously all know, but the instructors don't, so it was bad more than once (like about the "traumatic breaking of the bad AFP result to devistated parents") when all eyes were on me and the teacher rambled on, CLUELESS. In some work scenarios, I could see where putting it out there like hey, any questions, I am here is a good idea. You did the best you could, she just needs a perception adjustment.
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Post by Kristen on Nov 2, 2005 12:28:24 GMT -5
Hugs...but I have a 2 and a 3 year old if you want to borrow them
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Post by Kristen on Oct 31, 2005 15:56:47 GMT -5
Trisha, I think you said the right thing! Do you talk much about DS? If not, you could use it as a way to bring it up, but besides that, It hink what you said is adequate.
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Post by Kristen on Oct 27, 2005 12:32:11 GMT -5
I am very sorry for your loss. May the Lord hold her in His arms and keep her always.
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Post by Kristen on Oct 26, 2005 12:43:55 GMT -5
That makes me just sick! I don't know Canadian laws at all, but there must be soemthing that they can do for him to have a safe place to go to school. That is a bear minimum requirement! Who cares if she didn't know he had dislocation problems? Does that men the other kids get kncoked around no problem? That did not make sense to me at all!
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Post by Kristen on Oct 27, 2005 12:31:17 GMT -5
I feel ya. I went and got Syd the cutest angel wings and halo trimmed in maribu feathers (I put little red sparkly devil horns on the headband - gotta keep it real) and a white sparkly sash to put on her old flower girl dress (it's plain white empire waist with a full skirt). She has a FIT when I put the halo on her and the wings? She's like a dog chasing her tail! She is now wearing her tutu she got for her b-day and being a ballerina. It is so hard when they don't cooperate with your fantastic ideas. I am possessed about using this dress again for something. Anyone know how to dye matte satin?
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Post by Kristen on Oct 27, 2005 12:34:41 GMT -5
I am trying Gloria's way! Carter gets wild when he sees it coming. This from the kid who used to take it right down!
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Post by Kristen on Oct 25, 2005 12:19:08 GMT -5
See now, in the time it took you to read this, you could have chug a luged that castor oil and made your first trip to the potty! Hold your nose and CHUG IT! I would put it in some cranberry juice - the bittery sweet seems to cut the rank taste of most things.
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Post by Kristen on Oct 24, 2005 13:32:42 GMT -5
Petra will be the most beutiful angel in heaven for sure! COntinued prayers for you.
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Post by Kristen on Oct 21, 2005 9:44:36 GMT -5
I know what you mean! How long I labored to try to get Carter to bend his knees when he stood. UGH! This is probalby of no help, but over time he just did. He doesn't walk like that or anything, so try not to worry. Part of it is a truly in their own time thing.
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Post by Kristen on Oct 21, 2005 11:40:53 GMT -5
Many prayer and condolances.
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Post by Kristen on Oct 21, 2005 16:46:49 GMT -5
Glad it went well! My Sydney had a frenulum (the part that holds your lip down) that actually grew inbetween her front two teeth. One day she got up from her nap and had half a face full of blood - she had hit it in her sleep or scooted around just the right way and released it - EEEKKK!!!! It does heal very fast - hope he feels 100% soon!
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Post by Kristen on Oct 16, 2005 19:00:22 GMT -5
I had a u/s at 30 weeks to confirm there was still fluid in there, but the Dr. wrote it up as screening for DS. He didn't get that I was not worried, but it got what I wanted, so whatever! The looked at the nauchal fold and bracheocephaly (flat head). The sonographer actually did it, then the radiologist had her redo that part to get a better view. I was like, so what are you looking for, nauchal fold or bracheocephaly? She was like, oh, you know? I said oh, please, don't bother, Carter has neither but has DS anyway! We got a good laugh out of it, but she had to do it anyway to make the rad happy.
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Post by Kristen on Oct 14, 2005 13:07:05 GMT -5
Holy cow! What a cow that woman sounds like! You can share this example if you like: Carter gets respite are and I gladly take it Renee (the respite girl) was here yesterday. the kids were horsing aroudn watching some TV, so I came out of my office cave and made a pot of coffee for us. She has 2 girls similar in my kids' ages and we talk about all kinds of stuff. At one point Carter did something which warranted a time out (whining). Put his booty right on that stool and he sat there the whole three minutes without moving. When I got him off, I worked with him to help his say his version of "sorry" and he shook his head no (and even verbalized it a little - YAY!) when I aksed if he was going to keep whining then he got a big hug and kiss and was sent on his way. No more whining. She has worked in different homes for diabeld people for YEARS and SHE was floored. She could not stop talking about how well behaved and disciplined and smart he was to do that. I was like, what si the big deal? She said you have no idea what a big deal that is! Moral of the story: treat disabled kids no different and often they will be no different. I know YOU know that, but you can use that one on your MIL to drive the point home AND let her know that Ali will certainly learn.
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Post by Kristen on Oct 13, 2005 12:41:29 GMT -5
I think you handled it great and I am actually a little glad your sister is upset. NOT that she should be that upset, but at least she is concientious about it and you know she isn't allowing that kind of talk at her house, KWIM? Some people I go to school with say retarded all the time and I just want to smack them upside the head sometimes and tell them to get a new word, they aren't 9 LOL! Your nephew is, though, so I am sure after some explaining a few times he will get it. As for what to say when your child asks you that...uummmm....I have not been there (yet) but I think I would tell him that someone was using a word wrong and I am sorry his feelings got hurt by it. Does she know she has DS? Maybe that would be an opening to talk about it more with her.
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