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Post by ALLISA on May 16, 2009 8:06:54 GMT -5
True....while it is still summer....then it changes to fall and THAT is my fave......winter...bluh.....but spring is also a fave...... Ok I cheated.....I can't pick a favorite TPBM votes for American Idol.......
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Post by ALLISA on May 16, 2009 8:02:55 GMT -5
Are you off your rocker? Of course you are. You have a kiddo with Ds. Who of us ever gets to sit down and while away the day in a rocker? LOL! mb That is classic !! I suggest you use that on the guy next time you see him. As far as his statement that 3 year olds don't know or recognize letters ? Someone better tell Sesame Street that they are wasting their time !! I hope you walk away from this experience learning that there are some people who you listen to, ponder their advice and refect on. Others....especially those who ask you if you are off your rocker....are NOT one of those, and you should actually do the opposite of what they suggest ! I can still remember Erin's kindergarten teacher accusingly asking me " who told you about social stories" when I suggested using them as a way to help with her behaviors.....and then....telling me that Erin was much too young and immature for them to be effective
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Post by ALLISA on May 13, 2009 17:39:17 GMT -5
true...I did have a wonderful mother's day ! TPBM will be watching American Idol tonite to see who the final 2 is....or....they did watch American Idol and now know who the final 2 are.....
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Post by ALLISA on May 13, 2009 16:26:11 GMT -5
please remind me again of your daughter's age....can she tell you anything, communicate how she is feeling ? Erin used to stim VERY bad when she was a toddler......and she had an odd thing she did...... She would tuck her head down so chin was touching her chest, then look up ( through her bangs) at us.....and at the same time.....her arms and legs would lift up and she would hold that pose until we shook her out of it.......it was REALLY odd ! and when I say "hold the pose"....there was a slight tremor to her whole body as she maintained the position....... and the first few time I saw it....it frightned me......her face was very slack and it appeared as though she were in a trance Does it sound anything like what you are seeing ? and to sum up....for US.....it appeared to be a stim....not a seizure.
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Post by ALLISA on May 9, 2009 18:36:36 GMT -5
Just echoing the others....so very sorry that you are going through this.....
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Post by ALLISA on May 9, 2009 18:32:30 GMT -5
Debi.... What a time for you emotionally..... I reread your post a couple of times....and.....my 2 cents are as follows and you can do with them as you like..... It's just that I want one more year with him at home if I can possibly swing it plus I am having very hard time imagining how he will do with the change. Sounds to me that you are very happy with the place ....but....you just didn't want it this quick......so my 2 cents are......he can still come home and have a sleep over with you !! Just because someone has their own place doesn't mean they can't spend a night away once in awhile AND I imagine he isn't moving across the country !! I'm sending you big hugs and giving you my 2 cents with many smilies..... I think it is wonderful and inspirational to read your post !! To know that you planned, researched, and advoacated for your son and NOW.....he is onto the next step in HIS life.....I think this might be the best post I've read here on Uno all year !! It is totally normal for you to be feeling this way....DS or not....I suspect you'd be feeling this way I for one will be anxiously awaiting your next post to see what you decided.....be sure to come back and tell us all !!!
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Post by ALLISA on May 5, 2009 17:52:33 GMT -5
Jackaie..... I've been WAITING to hear how the trip was !! I'm thrilled for you all !! Sounds just fabulous !! I'll wait patiently for the pictures !
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Vegas
Apr 29, 2009 5:30:09 GMT -5
Post by ALLISA on Apr 29, 2009 5:30:09 GMT -5
wishing you a great trip, too !
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Post by ALLISA on Apr 29, 2009 5:28:20 GMT -5
wow...can't fathom a last iep !! LOL !! Welcome back....hope you & family are well !! I missed you !!
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Post by ALLISA on Apr 26, 2009 16:03:45 GMT -5
so cute !! I sent you a friend invite....
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Post by ALLISA on Apr 19, 2009 9:16:29 GMT -5
I am so stealing this pose !! It is great....IF IF IF I can get Erin to lay still !! LOL Love the kids....so cute !!
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Post by ALLISA on Apr 10, 2009 5:28:58 GMT -5
I had tears reading your post....I am sorry for your loss and sorry that I never had a chance to meet him...how blessed all of the people were who did get to know him.
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Post by ALLISA on Apr 5, 2009 11:47:12 GMT -5
I 'm sorry....may have missed previous post...but what surgery is she having....tonsils, yes ? Heart and lungs ok ? Not too clear to me....sorry...... Why do they think she may lose some of her speech abilites ? or her words ? I have never heard that before She doesn't mean lose permantly ? does she ? Am I missing something ? Sorry....little confused....maybe I need to look up an old post to catch up !!
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Post by ALLISA on Apr 4, 2009 23:07:49 GMT -5
I was thinking and wondering about them and what ever happened. I "met" a mom on a Children with Diabetes board who has a son with Trisomy 18....he is 11....and has Type 1 on top of the trisomy.....he is actually in the hospital now .....had some breathing troubles.....but appears to be improving...... please keep us updated on this family....I have thought of them often.....
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Post by ALLISA on Mar 24, 2009 22:29:14 GMT -5
THANK YOU THANK YOU ..... to the poster asking this....AND for the responses....now for the first time in NINE years....I have Erin's picutre here !! I kind of knew how to do it...but....don't use photobucet or onetruemedia....but....do use facebook....and just realized I could get one of those...thanks !
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