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Post by Chris on Sept 5, 2006 16:51:51 GMT -5
Bob,
Thanks for the interesting info. I think if a woman is considering having a CVS or amnio, she should ask the doctor who will perform the procedure what HIS percentage of patients have miscarried.
Chris
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Post by Chris on Sept 5, 2006 16:48:44 GMT -5
I'm not 100% sure but I think the aide has to be with her all day except for the aide's lunch and restroom breaks. I don't know about therapy but they do accompany them to music and phys ed. I would let them know what you expected of a full-time aide and show them the IEP.
Chris
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Post by Chris on Sept 5, 2006 16:55:50 GMT -5
Laurie,
You asked a reasonable question but the truth is there may not be a schedule yet. I teach elementary music and scheduling is a nightmare. Therapists are the last ones to make their schedules since they are waiting for music, gym, art, resource, etc. Really, there is no need for that lady to be so rude. Write the letter!
Chris
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Post by Chris on Sept 5, 2006 17:01:50 GMT -5
Jessie,
Take it easy on yourself. You must be totally exhausted right now (any morning sickness?). Just wait till you have three kids, you will have many more bad parenting experiences then. BTW, I am very jealous...........I want a new kitchen!!!
Chris
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Post by Chris on Aug 26, 2006 16:19:39 GMT -5
I also watched this on 20/20. It was so sweet and it really touched my heart. Happy tears were streaming down my face. Chris
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Post by Chris on Aug 25, 2006 14:57:52 GMT -5
Awww............he is just adorable!
Chris
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Post by Chris on Aug 18, 2006 15:16:52 GMT -5
Great news!!!
Chris
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Post by Chris on Aug 18, 2006 15:14:08 GMT -5
Long time, no hear! It's good to see you posting again.
We have the opposite problem with Sarah. She just keeps getting bigger and bigger. Although, her pediatrician isn't worried about her constant weight gain, I worry. She does seem to grow in height at the same rate as gaining weight.
If Ethan is progressing developmentally, I wouldn't worry about his lack of weight gain. It sounds like you just have very slender kids. I have a friend with a little boy with Ds who sounds just like Ethan. He is four (12/01) and is very slim. He is also very active and is making great strides developmentally. Her three typical kids are thin also.
Chris
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Post by Chris on Aug 10, 2006 16:38:52 GMT -5
Thanks for tryint to share. Maybe you could post the website by putting a space between each letter.
Chris
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Autism
Aug 10, 2006 16:48:15 GMT -5
Post by Chris on Aug 10, 2006 16:48:15 GMT -5
Annie,
AI stands for the special ed eligiblity for autistic impaired. I don't know if it is an antiquated term but it is what the school districts use here.
I know what you mean about diapers! Sarah can still squeeze into a size 6 but her days are limited. I can't imagine what we will have to spend when she outgrows size 6.
Chris
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Autism
Aug 9, 2006 8:17:43 GMT -5
Post by Chris on Aug 9, 2006 8:17:43 GMT -5
Annie,
To qualify for one subsidy in Michigan, your child just needs to be in an AI program at school. I can't remember the specific amount of the subsidy but I believe it is about $220 a month. Your child does not have to have autism as you described but ASD. The only qualification is that a family's income is under $60K. Children with ASD or autism also qualify for Children's Special Health Care Services but Ds is not a qualifying condition to receive CSHCS.
I wouldn't trade Ds for autism no matter what additional services might be available. I do count my blessings daily that Sarah only has Ds. I guess I have seen so many kids improve dramatically with ASD that it seems they have more hope of living a typical life.
Chris
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Autism
Aug 8, 2006 21:35:58 GMT -5
Post by Chris on Aug 8, 2006 21:35:58 GMT -5
I believe they have making the spectrum wider. KWIM? I teach music in an elementary school and am surprised to find out when some of the kids are diagnosed as AI. I guess what I am trying to say is some of the kids do not appear to be affected much by their autism. I heard someone say that they believed ADHD was at the very top of the autism spectrum. I have a child with ADHD and I can see why it may someday be included in the autism spectrum. Sometimes I get upset because in Michigan, kids with autism qualify for more services than kids with Ds. I have seen kids with autism that are at the high end of the spectrum get more services and subsidys than Sarah yet they will probably be able to live independently one day. Just an interesting note.......A few months ago, Sarah's case manager (social worker) told me that she had autism! I knew that she was a little quirky but I was really surprised to hear she had autism. The day she told me, she had forgotten to wear her shoes into my house and had left them in the car. She said shoes really bother her and she kicks them off as soon as she gets in the car. ;D By the way, she is an awesome social worker and we feel so blessed to have her coordinating Sarah's care. Chris Chris
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Post by Chris on Jul 20, 2006 16:01:07 GMT -5
I understand that I am a little sensitive about my decision to keep Sarah in a more restrictive environment. Last week I took Sarah to a biking program for kids with disabilities when a group of moms started talking about how inclusion was the only way to go and how kids in special ed programs are never taught anything. One of the moms has a nine year old daughter with Ds and has fought and fought to keep her in a typical classroom. I just stood there and didn't say a word because I was dreading telling them that I chose a self-contained special ed school for Sarah. I tried her in a less restrictive school and classroom her first year of preschool and it just didn't work for us. Honestly, unless she starts communicating better, I wouldn't even consider a typical classroom. I am sure that lady was just trying to be helpful and save you from something she may have experienced. Trust your gut and know that no placement is permanent. If you decide at a later date that you want MM fully included, that is doable. Chris
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Post by Chris on Jul 18, 2006 21:18:56 GMT -5
Tienie,
I may have told you this before but when I had an amnio, they initially missed that my daughter had Ds! They called me saying she was a "normal" baby girl. They were specifically looking to see if she had Ds since they found a soft markers on an ultrasound. A couple of days later, they called back to say.........oops! At first they believed she might have mosiac Ds but when they look again, by golly, she had that extra chromosome in every cell. My point is that humans do make mistakes.
Chances are that Meghan doesn't have Ds but I would definitely do further testing. I know you must be so frustrated. Hugs!
Chris
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Post by Chris on Jul 14, 2006 12:06:22 GMT -5
Thanks, Allisa! I need all the help that I can get.
Chris
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