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Post by amyzimoski on Jun 28, 2004 12:00:28 GMT -5
Amy in New Iberia, Louisiana
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Post by ooginal on Jun 28, 2004 13:05:19 GMT -5
Bob & Pam McKinney, parents to Daniel, 25, MDS.... We recently moved to the Oregon Coast (South Beach) from Pensacola, FL.... Daniel gets an awful lot from the state and federal government and we are grateful for that....But, we could hardly get any $$$ or services prior to his 18th birthday.... It seems that it is all on the parents until their child becomes 18 and then, the state and fed. govt. seem to take some responsibilty for their support when they become adults....This was our observation (limited - only lived in 3 different states with Danny - TX, FL & OR)...When Daniel turned 18, we pursued getting him SSI...The SSA had him examined and "THEIR" doctors found Daniel "FIT and FINE"...... LIES, LIES, LIES......We bugged the heck out of SSA and they had him rexamined and he was found to be mentally incapacitated.....I dont know if your experience will mirror ours when your child turns 18, BUT - don't give up.... Just like a fisherman...SSA likes a good fight and sometimes that is what it takes to get them to see the need and to start providing support and services....
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Post by kimclmnt on Jun 28, 2004 14:48:19 GMT -5
Kim we live in Marlow Ok, close to Lawton Ok, and an hour from OKC
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Post by ShawnS on Jun 28, 2004 19:48:51 GMT -5
Im in Colorado.
Shawn
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Post by keeransmom on Oct 1, 2004 1:46:20 GMT -5
Hi! We are Debby ( mom) and Sitara,10, Preeya,7 Arunika 3 and Keeran 15 months in Portland,OR. We are completely private as of this fall getting services through our insurance at Dornbechers Children's Hospital at OHSU. ;D
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Post by ashleysmom on Oct 1, 2004 5:34:18 GMT -5
Annette, Michael, Logan,Morgan, and 21 month Ashley(ds) Tabernacle, NJ No services until Ashley turns 18 we were told we are over qulified for anything other than Early Intervention.
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Post by Cbean on Oct 4, 2004 14:20:26 GMT -5
Hi! I'm Christine, Mom to Ryan 4 & 1/2 and "No-name" (DS) who will join us around Christmas. I have already contacted Early Intervention and was told we've automatically qualified for all therapy and programs that fall under EI because DS was diagnosed through amnio. After reading all other posts I'm wondering what else there is out there.
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Post by lexybug on Oct 4, 2004 16:06:59 GMT -5
My name is Elizabeth and we live in terre haute, IN
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Post by amyzimoski on Oct 4, 2004 16:49:17 GMT -5
Amy- Erath, Vermilion parish, Louisiana
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Post by LaShonya on Oct 4, 2004 18:37:14 GMT -5
Hi we are Chicago,IL
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Post by logansmom on Oct 4, 2004 20:31:27 GMT -5
Hi. We live in southeastern Indiana (halfway between Indianapolis and Cincinnati). The only services that Logan currently receives are through First Steps (Early Intervention).
Kim
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Post by tornadoxs2 on Oct 4, 2004 20:41:42 GMT -5
I am Charissa Mother of Benjamin 5 months old
Benjamin Qualifies for early intervention (birth untill 3 yrs old) automatically because of diagnosis of down syndrome and he also recieves supplemental medical assistance there is no income guildlines also due to the DS diagnosis. We however do not qualify for SSi due to being over the income guildlines. WIC is also an automatic because of his DS and the medical assistance he recieves. I am in Scranton PA, in wyoming county
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Post by Deannalee on Oct 5, 2004 10:58:09 GMT -5
Deanna---New Albany, Ohio
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Post by briarsmom on Oct 5, 2004 20:55:22 GMT -5
Paris, Arkansas
Lori
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Post by Claire on Oct 5, 2004 21:52:53 GMT -5
Claire mom to Adam. Seems like I'm the only one from Northern, Ontario, Canada. It's Ok becaue I have all of UNOS as my friends. LOL
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