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Post by YoshsMom on Aug 22, 2005 13:14:54 GMT -5
With Yosh it would be eating without a struggle. I've recently discovered that if I leave food on the floor and ignore it, he'll put it in his mouth and even chew. But the same food in his high chair gets tossded to the floor. And his feeding therapist broke her hip and will be out of commission for months.
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Post by YoshsMom on Aug 3, 2005 21:30:52 GMT -5
Yehoshua Binyamin...5lb 2 oz
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Post by YoshsMom on Jul 31, 2005 16:35:07 GMT -5
I have the most incredible family! We are sponsoring a team for the NY Buddy Walk and when we emailed my sister about it she not only promised a donation to NDSS, but she and my bil are going to give money for Yosh's special needs trust every year. I started to cry when dh told me about the email. She has 3 kids of her own, who are totally psyched about doing the walk with Yosh and my bil lost his job and started a new business just a couple of years ago. But Yosh's futre is just that important to them. I'm a very lucky woman. BTW, if you want to support NDSS through our Buddy Walk team, the link is join.buddywalk.org/site/TR?pg=team&fr_id=1068&team_id=3700Yosh's new website is a work in progress.
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Post by YoshsMom on Jul 31, 2005 12:25:40 GMT -5
Yosh has the silent reflux and we figured it out from all the pain he was in after eating. He's on prevacid, but eating is still an issue. Adding rice cereal and using soy formula were also key to making him more comfortable. The slightest bit of dairy and he throws up for hours. sk your dr. about thickening his formula with rice.
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Post by YoshsMom on Jul 28, 2005 19:55:15 GMT -5
When I was teaching spec ed I had 12 kids and 2 aides for pre-k, one aide for kindergarten and up. I never had a floater, but I don't think I would have liked it. My aides and I were a team. I taught the main lesson and she did review and maintenance. A floater doesn't get to know me or the kids, doesn't become part of the routine. Also, she's a second pair of eyes in a class where behavior problems are a given.
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Post by YoshsMom on Jul 22, 2005 17:38:16 GMT -5
Yosh didn't take to it. He loves being read to, but I think these books bored him. He likes pictures and rhymes with his books and is very selective. If I give him a choice of 2 books, he looks through both of them to see which he wants, tosses one away and gives me the other. He just wouldn't sit still for love & learning.
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Post by YoshsMom on Jul 22, 2005 12:59:37 GMT -5
Yosh came home with an ng tube. To get him drinking a bottle we thikened the formula with rice and gave it to him at the same time we did the tube so he would understand that the bottle would fill him up. If she's spitting up, I would definitely check for reflux. Also, we learned too late that ng tube feeding can lead to trouble with solids later on. I would look into oral motor therapy as soon as possible. Yosh is still mostly on the bottle.
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For Bob
Jul 18, 2005 17:40:19 GMT -5
Post by YoshsMom on Jul 18, 2005 17:40:19 GMT -5
Boy, you sure miss a lot when you skip a few days.
I am an orthodox jew and believe that everything is part of G-d's plan. That said, I had an amnio because dh and I wanted to be prepared if something was wrong and we're very glad that we were. It helped us with dealing with all of Yosh's later medical issues to have already known about the ds.
My religion says that children with ds have a very special soul, of a prophet or saint, and that their lives are kept simple because they have only 1 or 2 tasks to complete in this world. I know in my heart that it is Yosh's mission in life to make others happy.
I annot think of any circumstance in which I would have an abortion and would not have even before I became religious. But that is my choice and I have no right to force my choices on anyone else. When I taught in the South Bronx I had to deal with too many unwanted children. Even after 8 years away, I have nightmares about what was done to those children by people who never should have become parents. And Kristen, it is entirely possible to treat your typical children well and be viscious to your disabled one. I called the police on that one and only that child was removed from the home.
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Post by YoshsMom on Jul 18, 2005 17:12:32 GMT -5
So sorry all of you have to go through this. But Emily's got a lot of people praying for her and I know you're strong enough to get through this.
Last year at just about this time I had a 4 month period where almost everyone I loved was in the hospital with something scary. First Dh had kidney stones, then a cancer scare with Yosh that turned out benign and a my Dad really had cancear and needed his kidney removed. But those black clouds do go away and next year at this time you'll be thankful for getting through these bad times, just as I am.
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Post by YoshsMom on Jul 17, 2005 12:24:40 GMT -5
There is a great reading system at www.readnowgetreadygetsetread.com/Yosh isn't ready for it, but I've used it with students and its amazing. It teaches letter sounds instead of names and pairs the sound to a picture.
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signing
Jul 12, 2005 10:50:35 GMT -5
Post by YoshsMom on Jul 12, 2005 10:50:35 GMT -5
We love Signing Time, too. Yosh picks up so much from it and loves the songs.
Check with your insurance company to see if they cover speech, ours does. Yosh's ST at school just reccommended we try a therapist from ITI, which you can find at talktools.net. They have all been trained by Sara Rosenfeld-Johnson, who is supposed to be fantastic. Luckily one of the therapists on the site lives nearby.
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Post by YoshsMom on Jul 12, 2005 10:58:22 GMT -5
Yosh started with the commando crawl, because he had casts for club feet. After the surgery, he did a kind of crab crawl, on both hands, one knee, and one foot off to the side. But his main method of transport was bouncing on his tush and he did this until he started walking. Oddly enough, after he took his first steps he started doing real hands and knees crawling if he fell or had nothing to hold onto to stand up. Now he does the tush bounce when he is overly exicted.
His pt wanted him to crawl to strengthen his trunk muscles, which are still a problem area. He has difficulty turning at the waist to reach for things. But we let him do things his own way.
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Post by YoshsMom on Jul 8, 2005 14:48:44 GMT -5
Thats so wonderful ! Yosh loves Siging Time and picks up new signs from it on his own. Its the best signing dvd I've seen.
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Post by YoshsMom on Jun 30, 2005 18:50:48 GMT -5
I had the same thought as CC. Especially if this is a change in behavior for her. A lot of the kids I used to work with had been through some really rough experiences and they had trouble dealing with how angry and scared they felt. Not having the language skills to express their feelings made it even harder. I would look for a child psychologist who specializes in play therapy.
I had some doubts about posting this. Lauren could just be going through typical behaviors that all our kids experience and I didn't want to add to your worries, but our school psychologist really helped my students get past their experiences. Best of luck.
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Post by YoshsMom on Jul 3, 2005 9:23:52 GMT -5
The nurse is there to work on feeding, since Yosh is still mostly dependent on the bottle. I was expecting the district to just give him an aide, but they were afraid of him aspirating (which he doesn't do). The nurse is trained in pediatrics and has experience feeding kids like Yosh.
And I have definitely remembered what to do with my free time, sleep late and read. ;D
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