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Post by Jackie on Jul 15, 2009 14:40:32 GMT -5
So Em just paid her umpteenth visit to an optometrist...she wore glasses from about age 12-18...had them prescribed several times since but never wore them...and then today we went to an optometrist here who has a daughter herself with DS...(I felt really old cuz the doc went to school with my girls...LOL)...and she said Ems near and far cancel each other out and that she probably will see best with NO correction. Em is a happy camper.
Jackie
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Post by Jackie on Jul 15, 2009 12:12:22 GMT -5
ok...you all are my Martha Stewart forum for sure...I have lots of lightly laminated wood floors in my home. They say no water or vinegar...so...how do you clean them??? I have the hardwood spray but it is hard to use and makes the dust mop sort of catch on it. I need to get things off since the kids visit...you know...the remnants of their lemonade stand...etc...LOL
Jackie PS ...anyone tried that shark steam mop adv on TV or anything like it?
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Post by Jackie on Jul 15, 2009 11:50:44 GMT -5
ok ..now in re reading not sure I said it the right way. Didn't mean to imply that the early years are a piece of cake...LOL. Just that the problems you face from about the middle school yrs on are very different...and I really think most of us experience a shift in emotions about then as well. ;D Jackie
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Post by Jackie on Jul 15, 2009 11:01:51 GMT -5
Welcome to Uno...my daughter Emily is 29. YES I do think you have it right...it does get harder (but in a different way) as they grow older. The problem is that as our kids age their needs become more unique...one somewhat generic approach just doesn't do the trick like it does when they are younger. There are no adolescent developmental programs like there are for infants. Since each adolescent's physical, emotional and learning needs are very individualized you can't always turn to a message board or a book to solve the problems. I found that there was a lot of 'punting' going on in our lives.
When our kids are young...it is all still pretty new and while it seems difficult at times things have a way of usually working out. As they get older I think we start relating to them in a more mature emotional way. My child did pretty well in most areas but as she grew and I started relating to her more as an adult I was often baffled and irritated when she didn't function at the level I "imagined" her to be. I also had anger (which confused me) as well as some depression as I watched her peers pass her by and have social lives unlike hers. So you can see you are not alone in your feelings. Life with a person who has DS is a constant roller coaster and as they grow the peaks and dips somehow manage to get a little bigger as time goes by. We are still encountering new highs and lows in Emily's journey, but the good news is we have all survived!!!!! ;D
This board is a good way to express yourself...both in frustration and in joy and hope. We have all been through it too. These are people who have and are still walking "a mile in your shoes". You will learn a lot here and I am sure will find some life long friends and we will learn from you too. Hope you stick around.
Jackie in Texas
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Post by Jackie on Jul 15, 2009 8:50:56 GMT -5
Have to do lunch next week so you can tell me all about it and meet Em....maybe Kaelyn can come too.... ;D
Jackie
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Post by Jackie on Jul 15, 2009 8:01:07 GMT -5
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Post by Jackie on Jul 14, 2009 10:43:31 GMT -5
I will pray for you but really don't know this story...is it something you can talk about?
Jackie
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Post by Jackie on Jul 14, 2009 10:30:21 GMT -5
Emily has been in it every year...I am sure it has to do with the fact that until a year or so ago there were very few adults pics submitted. Emily has loved every minute of it...being on the big screen and really had a ball when she flew to DC and drove to NYC with Marnie to see herself in person!
I was going to give it a rest this year but then got this really great pic of Em and her art mentor Mitch...so sent it in anyhow...but...I don't think it will be chosen because its more of a portrait than an action shot which I know is what they like most.
It has been really fun for Emily. She won't mind not doing it anymore. I hope everyone gets a chance for their child to be in it at least once. This year the selection process seems to be handed over to another entity to choose ...so who knows what criteria they use...maybe just a lottery type approach. You know you can send OLD pics in too...doesn't have to be current
Good luck everyone...maybe chances will be easier since not so many pics this year being submitted...
Jackie
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Post by Jackie on Jul 13, 2009 14:02:48 GMT -5
Yes...I almost cried when I heard this this morning...Katie and I were sitting there looking at the pics of all their kids...many with DS. Katie said she thought she had seen a story about them somewhere before...wonder what will happen to all these children now.
Jackie
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Post by Jackie on Jul 11, 2009 15:29:56 GMT -5
Where has time gone!!!! They are precious and...so grown up!...Now...honest...do they get along as well as they appear to in these pics? ? Jackie
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Post by Jackie on Jul 7, 2009 18:22:13 GMT -5
LOL...what is this? looks like something picked up on my post about buying Em a purse....
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Post by Jackie on Jul 7, 2009 18:10:55 GMT -5
Sesame Stree was a trailblazer years and years ago in having kids with DS and other disablities. Emily Perl Kingsley had her son Jason on ...not sure when she began this but it was back when she was a writer for the show and...he is older than Em.
Jackie
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Post by Jackie on Jul 7, 2009 12:42:08 GMT -5
I think she looks like a little doll...she is precious!
Jackie
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Post by Jackie on Jul 7, 2009 7:42:47 GMT -5
Kelly this was a GREAT post...first of all I think you handled it all quite well. I think everyone here can relate to you. I feel like I am part of this great elite 'club' of parents of kids with DS and I would like to think most other parents feel that way too...but ya never know, do you?
I have people who come into my studio ...this is a mid size town and I imagine most newer parents of kids with DS hear about us and Em...and are told they can find me at my art studio. But when most of them come in they are not appearing to be seeing me out so it leaves me clueless as to how to handle their babes. The same thing used to happen when I had a childrens clothing store. They would come in...walk around...and leave without buying. I just never have figured out a correct 'pickup line' to introduce the subject when they don't do it first.
Kelly ...like you I usually found a way to introduce DS into the conversation when people came up to me with Emily. For me that was an ice breaker and I was comfortable talking about it. I guess I sort of figured too that in a way it might be educating others in the process. If I have Emily with me it's a lot easier to approach someone else. But I am still pretty clueless as to how to approach someone else for fear of offending them.
Jackie
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Post by Jackie on Jul 7, 2009 7:31:51 GMT -5
Thanks all...in the scope of all that is happening in the world...this is small potatoes. But our live would have far less stress if this would finally happen. It was just 3 days away...the closing..which makes it all that much harder. Long story about it all but its a neat house. People just don't seem to understand that an older home is just that....older.
Jackie
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