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Post by Googsmom aka Jennifer on Aug 2, 2011 8:43:10 GMT -5
Well, i'm waiting for pics of the feathers?!!
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Post by Googsmom aka Jennifer on Jul 17, 2011 18:28:19 GMT -5
OMGoodness!!! Could she be any more adorable!!!!
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Post by Googsmom aka Jennifer on Jul 16, 2011 20:10:23 GMT -5
UNO will never go away if I have anything to do w/ it. My best friends live on Uno street
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Post by Googsmom aka Jennifer on Jul 16, 2011 20:07:03 GMT -5
YEAAAAA!!!!! This is great news!!
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Post by Googsmom aka Jennifer on Jul 16, 2011 20:04:23 GMT -5
Hmmm, I too thought of buzz cut but it seems he would just stimm on something else. I know little of stimming/sensory issues, sorry. I hope someone has some great words of advise. What about maybe asking a counsler if they have any ideas or even maybe the disability center near you. {{{{{{{{{{{HUGS}}}}}}}}}
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Post by Googsmom aka Jennifer on Jul 16, 2011 19:48:39 GMT -5
Hi everyone. Well, for those of you not over on the FB, here is the update on The Girl. What they thought might be child~type melanoma is not. Full on adult melanoma. The results of the second path. report said they did not get it all w/ the last surgery so we have to go in again. There are more spots and roots and leaders in her darn foot. So this means that she will go in and first thing they will do is lymph node mapping in the morning. Then off to the OR to remove more of her foot and then they will have to do a skin graph b/c the area they need to take is so large. 5 in by 3 in. Can you imagine that. She wears a size 8 shoe so look at your foot and picture that one. While they are in there they will be removing a bunch of lymph nodes from behind her knee, groin area for sure and depending on what the mapping says, some from her neck and armpit area as well. They will then send them off to the path and re~stage this again. Right now we sit at 1b. If it comes back a 3a,b,c or God forbid even a 4, we are in some deep s*#t!! So I just Pray that it just wants to hang out at the 1b stage. A couple girls I don't even know at work will be covering 5 days for me so I can stay home to care for her. She has to remain flat on her back in bed for 5 days w/ her foot/leg elevated and then I will also have to drain the graph as well. Thank God I went to class and decided to take all the attachments on that licence eigh? God was thinkin'. Then I will feel comfy enuf to have her over at Grammas/Aunties until post op check up time so I can go back to work to pay for this crap. So thankful she at least has good insurance through step moms work or we'd really be screwed. I have not cried today which is a miracle. I have talked to a few Mommas who have kids w/ melanoma and they have been a big help. This is just a waiting game. Wait for surgery. Wait for medicine to work. Wait for remission and then b/c this is the beast it is, wait for it to return and do the cycle all over again. I love love love all of you here so much. Thx for the prayers and wishes here and on FB. BTW, where is summer? Its been raining for days here? I just have to smile and remind my self that Bob reminded me I do live in a rain forest LOL. Oh yea, this will al happen on the 29th of July
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Post by Googsmom aka Jennifer on Jul 16, 2011 19:24:57 GMT -5
HI HI HI Welcome to Uno!!! THE BEST forum out there. The parents on this board are awesome. I'm Jennifer, Momma to The Brookster who is 5 yrs old. Congratulations on your sweet new addition. Got any pics? We LOVE pics and new babies areound here {{{{{{{HUGS}}}}}}}
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Post by Googsmom aka Jennifer on Jul 7, 2011 21:46:53 GMT -5
Thx girls. I love this group!! I had one hellofa day last night. Today is not as bad but it's like a big flashing neon sign right in front of my eyes flashing "melanoma, melanoma, melanoma" and I cant find the darn off switch. Brook in other news is good. Kidney function good. GI system good. Liver a bit enlarged but not concerning, I guess. They took a pee sample to culture again and then spilled it after we left LOL. We will run a new sample up when we go back up w/ Mary, no big deal the doc said. BTW, what a great doc!! She was sooooo nice and spent 3 hrs w/ Brook and I talking and trying to figure out the blood in the tinkle thing and was facinated about this P.Regetti stuff. Good day for the Brookster
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hello
Jul 6, 2011 18:41:15 GMT -5
Post by Googsmom aka Jennifer on Jul 6, 2011 18:41:15 GMT -5
Welcome back!!
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Post by Googsmom aka Jennifer on Jul 6, 2011 18:40:15 GMT -5
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Post by Googsmom aka Jennifer on Jun 28, 2011 10:19:15 GMT -5
FOUR?!?!?!? *I'm going to faint*
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Post by Googsmom aka Jennifer on Jun 28, 2011 10:17:59 GMT -5
Hi Welcome back
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Post by Googsmom aka Jennifer on Jun 28, 2011 10:16:39 GMT -5
I agree w/ Jackie. Let her try it I would feel the same fears as you but I know the Uno clan would talk me into letting Brook go so here I am to talk you into letting Emily try it
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Post by Googsmom aka Jennifer on Jun 28, 2011 10:12:39 GMT -5
Oh this sounds fun. She willl do awesome!!
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Post by Googsmom aka Jennifer on Jun 14, 2011 21:05:12 GMT -5
Ok so this just might be the weirdest one yet LOL
Parents of girls..... ok so when your little one is using the potty does her pee go straight down or does it shoot straight out all over the floor?
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