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Post by Connie on Jan 27, 2009 12:08:32 GMT -5
Jessie,
I am so sorry to hear about this. We had to have our Golden Retreiver put to sleep 3 years ago...one of the hardest things I've ever had to do.
Give Jason a hug for me!!
Prayers, Connie
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Post by Connie on Jan 14, 2009 17:28:43 GMT -5
Well...that's a pretty useless feature!!!
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Post by Connie on Jan 13, 2009 12:10:56 GMT -5
OK....HELP
What is the difference between writing on someonese wall and wall-to-wall.
I'm confused!!!
Connie
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Post by Connie on Jan 6, 2009 9:17:57 GMT -5
First Welcome!!!
Second, My son Collin was also diagnosed at birth with DS but he wasn't as small as your little angel. Collin weighed in at 9lbs and 22" long. He was a tank!! He breast fed and it took me 8 weeks to get him back up to his birth weight and he's gained slowly every since.
Collin will be 9 in about 3 weeks and he only weighs about 50lbs He's about the size of a typical 7 year old.
Our kids just grow more slowly and while being small when they are little is worrisome as they grow it has a tendency to change quickly and they start having weight problems, with being to big.
Even though Collin is not over weight we watch it closely because he also has hypothyroidism with can cause weight problems.
I also have a 6 year old (who will be 7 in March) that only weighs 36 lbs. I know several people who would freak out at that but she is healthy and all muscle.
Each child is different and as long as it's not because of medical issues and they are happy I really wouldn't worry.
Again, Welcome...
Connie
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Post by Connie on Dec 12, 2008 22:17:44 GMT -5
LOL...sorry didn't mean to do that out loud!!
I've woke up a couple times to find Collin "cooking" He hasn't tried to use the stove....yet. He usually just gets a pot and fills it with milk, apple cider, spices, and anything else he can get open.
I agree...sometimes independence is not all it's cut out to be!!!
Connie
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Post by Connie on Dec 12, 2008 20:56:29 GMT -5
Collin is in 1st grade and we use a communication notebook for daily things like details about bad behavior, homework, people he played with at recess, good things he did, etc...stuff I can use to talk to him about his day. We also get a copy of his daily behavior chart they use so we can try and pinpoint what may be triggering some behavior issues.
I also us a PB wiki with a few of the teachers. In Collin's IEP it is written I will get daily communication but I'm not a stickler for this because things can get busy and people can forget. If I have any questions I call. Our school is really good about parent involvement, communication, and inclusion.
Connie
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Post by Connie on Dec 9, 2008 21:10:51 GMT -5
I can really relate to what you are saying because I've been there myself. When Collin was younger say 5 he was in a special needs preschool 3 days a week and a regular ed class 2 days a week. The special ed class was were he made his greatest strides (much to my dismay). I have come to learn that what's BEST for COLLIN is not necessarily what's BEST for me As far as squealing, just because our kids have DS doesn't mean they are immune from going through different stages that other kids go through...they just go through them later . Also, I have a 6 year old girl who squeals...drives me absolutely Banana's!!! Plus, she's picked some annoying behaviors up from the rest of her 1st grade class that are about to get KNOCKED out of her!!! Bad behaviors are not isolated to Special Ed class rooms... Now don't take what I'm saying wrong...because Collin is one to model behavior...both good and bad (ask me at a later time about the Typical kids and the boys bathroom : , or calling his aid Stupid or telling her to Shut up. Typical kids can also teach our kids some unwanted behaviors too Good luck in your decision though!!! Connie
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Autism?
Nov 24, 2008 16:12:30 GMT -5
Post by Connie on Nov 24, 2008 16:12:30 GMT -5
Kelly, I don't want to down play what you are saying but what you are describing to me sounds like "typical" DS traits to me for that age group. For me I have found all those traits are some where on that extra 21st chromosome....kind of like the love of ketchup Collin is now 8 but at your son's age....Collin had a lot of those same traits. Connie
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Post by Connie on Nov 21, 2008 10:28:47 GMT -5
Collin is 8 and will turn 9 in February. Well he just started this week tying his shoes independently!! May not be a biggie for some but it is for us!! He is so proud of himself.
While this school year was very challenging for us behaviorally in the beginning, he has made great strides academically and in independence. I am amazed at how well he is reading, writing , doing math and beginning to work independently.
So far we have conquered the shower and now the shoes....What's next?!?!
Connie
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Post by Connie on Nov 21, 2008 9:27:34 GMT -5
At home Collin plays with his GI Joes and his sisters Barbies my really big problem is him wanting to wear the Hannah Montana pink shirt I dread taking him into Target because he makes a beline to the girls department picks out a shirt with "HIS" girls picture on it!! LOL...then when I tell him NO...that's a girls shirt he proceeds to tell me he's a girl Dad didn't think him dressing up in his sisters princess dress was good I can only imagine how he would react to a Hannah Montana shirt. Connie
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Post by Connie on Nov 20, 2008 12:21:59 GMT -5
Jackie is always talking about Emily, Jack Sparrow, clothing and posters etc.... Well I have a problem Collin is obsessed with Hannah Montana...not Miley Cyrus!! Hannah Montana....he likes the blonde's . He is always asking to go to her house, says she lives in a BIG one. He had been really good at school so I told him I would let him pick out a movie...he insisted on buying HANNAH MONTANA. We go to the store and he wants all the Hannah Montana toys and clothing....Problem with that my DH would have a fit if Collin went around wearing a Hannah Montana shirt!!! How do I get him to trade obsessions? I would go for Woody (as mentioned earlier) or Mickie/Minnie mouse like Chris is but...HANNAH has to GO!!! Help!! Connie
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Post by Connie on Nov 20, 2008 12:12:27 GMT -5
WTG Noah!! I nursed Collin but at about 12 weeks we introduced a bottle so I could go back to work. He took it for maybe 3 weeks then refused. So my mom (a saint) had to feed him by spoon, dropper, sippy cup to get him to eat while I was at work. Collin started drinking from straw and sippy cups like a pro at about 5 months. But, if I was around he only wanted to nurse....He nursed until he was 16 months old. Keep up the good work and be patient!! You talked about starting solid foods. Collin was eating table food at 8 months. Things like thick oatmeal, mashed potatoes and gravy, Cheerios etc...I know doctors want you to wait until they are a year old but our kids have such texture issues...that the longer we wait the harder it is because with age our kiddo's get more of an opinion (and more stubborn : Connie
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Post by Connie on Nov 20, 2008 10:07:43 GMT -5
Sorry to hear about this Jessie. You and your family are in our thoughts and prayers.
Hugs, Connie
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Post by Connie on Nov 14, 2008 16:07:35 GMT -5
me too....I think Connie
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Post by Connie on Nov 13, 2008 9:42:29 GMT -5
sensory issues + loose tooth = OCD/Meltdown!!!
In 20 minutes Collin went from having a semi-loose tooth to a gapping hole. The child was obcessed...the tooth was driving him crazy. I am glad I got it out though because he is going on field trip today and I can only imagine the problems this tooth would have caused. Man was that tooth bothering him.
LOL!!
Connie
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