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Post by danikins on Jun 28, 2008 19:11:26 GMT -5
Excellent, WTG--music to your ears and enjoy. Dani is really into saying "poopy diapers" a lot. Not PC either--but she is speaking. Keep it going Jason Kim
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Post by danikins on Jun 28, 2008 19:09:05 GMT -5
WTG Damara.... Just so beautiful when they catch you off guard with all the new things they say and do. Great to hear. YAY. Kim
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Post by danikins on Jun 28, 2008 19:07:25 GMT -5
Aw Dawn, Just a big hug.... Being a single mom does have it's challanges. Dani gets into these throwing modes. I grow more in love with Dani every day. But, raising her alone has its challanges. Just wanted to send you a special "CALGON" hug. Jelani is blessed to have such a wonderful mommy. Kim
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Post by danikins on Jun 28, 2008 19:03:30 GMT -5
Brag away.... She is such a precious, beautiful love.... Thanks for all the hard work you are doing.
My mom used to say...I am going to squeeze the stuffings out of you--cause she loved us and her grandkids so much.
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Post by danikins on Jun 28, 2008 19:00:39 GMT -5
Congrats, How fun... Can't wait to see it. You will have fun and I love you are "prettyful"---you will always be "prettyful" Thanks for sharing. Kim
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Post by danikins on Jun 24, 2008 5:54:45 GMT -5
Hugs to Jason. I can not fathom how he must be feeling over what happened last week. It would shake anyone up. And now his fish--passing. I wonder if he will let the fish tank be cleaned again.
Kim
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Post by danikins on Jun 23, 2008 18:24:30 GMT -5
I am so glad to hear Joy is better. I was wondering about her. Thanks for the update. Kim
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Post by danikins on Jun 23, 2008 18:20:58 GMT -5
Wow, How awesome. She is emulating the gymnast perfectly. A future Special Olympian in your future.
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Post by danikins on Jun 23, 2008 7:01:50 GMT -5
Happy Birthday Ayden. I love your smile, beautiful eyes and would you mind sharing some cake. What a fun day. Kim and Dani
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Post by danikins on Jun 23, 2008 6:53:17 GMT -5
I was looking around on ebay and saw this DVD called Dakota's pride
Editorial Reviews
Product Description Dakota's Pride is a heartwarming documentary about a father's search for the truth about Down Syndrome. Tough questions are posed to and answered by a noted Harvard Physician, and parents of children with Down Syndrome. The answers are surprising and inspiring. In addition to being informative, this documentary celebrates the successes that have been and can be achieved by individuals with Down Syndrome.
Dakota's Pride has been aired on PBS and is a must see for anyone. This family friendly director's cut has 45 minutes of bonus track footage and ten extra minutes of running time.
"Informative and inspiring. . . It's wonderful to know that parents can be so involved, educated, and determined to reach out and make a difference. These people are giving many others hope." 'Dakota's Pride' is a truly inspiring tale! This is a feel-good documentary." Universal Film Festival universalfilmfestival.com
"Dakota's Pride is a unique film that shows a side to Down Syndrome that is rarely featured, and that is the hope and success that these individuals and their families can experience in life." Valerie M.B. VanDerSluis Programming Director KTWU PBSThe DVD is or has been played on PBS.
It seems to give a very positive and enlightening spin on raising a child with DS.
I am not good at linking. So you may need to google it. I was amazed at some of the captions.
Thanks all and Happy Monday.
She had a great time at her birthday party. They saw Kung Fu Panda. I was trying to pack some things last night and she kept Kung Fu"ing" me in the butt. I finally realized what she was doing and laughed. How could I be mad? It was just another reinforcement her memory is increasing. The kids were all great with her.
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Post by danikins on Jun 21, 2008 20:57:02 GMT -5
Oh your precious love. When I saw the photos I thought roseola too. Dani got it when she was younger. Hope she is on the mend soon. She is so beautiful. And you are a wonderful mother. Take care of her and yourself and keep us posted. Hugs, Kim
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Post by danikins on Jun 21, 2008 19:16:51 GMT -5
Jennifer, Please, please keep us posted. Your precious Joy sounds like she is feeling miserable. I am so glad she is in the hospital and hopefully getting fluids infused in her. Is she also having loose stools? Maybe you did say and I did not see that. I know Joy is in capable hands and will get great care. I hope to see good news soon.
We live fairly close, I am in Omaha. I am moving out of the Omaha Public School districts into another area as their program has more mainstreaming and I have heard great reports regarding Dani's soon to be kindergarten. Her OPS pre-school was AWESOME and her teacher a real GEM--but it is time to move on and see how Dani does outside the special ed classroom. She is in a great typically developing daycare center. Dani adjust quite well there and the other kids have taught her a lot. As she has them. There is another precious 4 year old gal at Dani's daycare too.
You can PM too if you want. Thanks, Kim
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Post by danikins on Jun 21, 2008 10:02:30 GMT -5
Okay, I am so excited. Dani has been invited to 4 birthday parties this year. 2 were from school and 2 were from daycare. She has attended 1 with her father, another one I was unable to take her due to a conflict and I can't remember the other one. Tomorrow I am taking her to the forth one.
First off, I jumped for joy as I never thought she would get included in any birthday partys unless it was family ones or other special needs kids. Course, my ignorance when she was born, had me crying at Walmart when she was just born, because I was looking at the crayons and markers and bawled thinking my little girl will never draw me pictures. WRONG........ Dani loves to color and draw and I have a box full of her works of art--not to mention the adorned walls and her legs.
Onto the birthday party. Tomorrow is with friends from daycare and they are going to Kung Fu panda. I called the mom and asked if she would like me to stay with Dani and she said "No". They know Dani and her son loves playing with her. So, I will take her there and assess the situation. However, Dani loves movies and knows these kids so I think she will do well. I plan on leaving but remaining close on hand doing some shopping near by. I will leave my phone number and see how it goes. Dani is very mannerly and speaks pretty well. However, I am a bit nervous since I wont' be around.
How have your "loves" done at birthday partys and did you stay or leave.
Kim [glow=red,2,300]mom to the love of my life Dani. I will love you forever and ever.[/glow]
Wish me and her luck.
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Post by danikins on Jun 21, 2008 9:27:31 GMT -5
For some reason, I cringe when I hear someone's story about "Down's babies or Down's kids". I love the stories but I don't like the use of "Down's" to personaize my daughter. Dani goes to an awesome daycare who includes her in everything. I wrote a synopsis about Dani. And one sentence, I did include, is my daughter is not a "Down's child"--she is my precious love who happens to have Down Sydrome. I never correct anyone and remain positive, but I do usually step in when people misuse the "R" word. I am very guilty of misusing words too and seem to be more careful of my wording since haveing Dani. This is just my opinion. Best to all
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SSI
Apr 22, 2008 7:00:32 GMT -5
Post by danikins on Apr 22, 2008 7:00:32 GMT -5
You know this SSI thing really stinkes. Like Jelani's mom, I am single too. I am a social worker for our state and while I don't do SSI, I do the other family economic programs. Sometimes, it gets so disheartening to see how some abuse the system to get their grants and benefits. However, I do have a pretty good caseload as many are truly trying to better themselves. But..... We have the Katie Beckett program here too. I was told my love would not qualify. She does still get medicaid and for some reason a $4 per month SSI check started showing up. I have not applied for anything since my ex left. Must he the COLA, Cost of living increase. In other programs we dedect 20% of gross income and give them expense credit for childcare, housing, utilities and some other possibilities. And in looking at resources, we exclude one car, use the accounts and see if any financial resources are one's that can be liquidated or accessible. My ex has a $10,000 fund set aside for Dani's school and his mom buys $50 savings bond. Since I can't get access to them, they don't count. So many rules, regulations and frustrations. I need to contact SSI. I was suppose to be in SSD training this week but cancelled due to a FULL caseload. Like everyone else, if you truly believe you should be entitled to SSI then reapply. Just my two cent's worth. Kim
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