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bomber
Feb 4, 2005 12:44:41 GMT -5
Post by Kristen on Feb 4, 2005 12:44:41 GMT -5
Jessie - I thought of htat, but look at where they were when the bombing happened - at a relative's celebrating withou thim along! There is no reason he shouldn't be with them. It isn't like no one was available to watch him because they are at work or whatnot.
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bomber
Feb 4, 2005 12:15:24 GMT -5
Post by Kristen on Feb 4, 2005 12:15:24 GMT -5
Am I the only one outraged at the descriptioin of how his family treated him? What the terrorists did was of course absolutely beyond reproach, but look at how his family regarded him! What a sad, sad story all around!
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Post by Kristen on Feb 2, 2005 13:13:48 GMT -5
I absolutely agree with you that he *IS* making progress! Why would someone write off an 11 year old? You mean to say that in the next 40 or 50 YEARS he will not improve? What is wrong with people sometimes?
I am hoping this is a phase with Carter. I have to tell ya, though, here he came one day about a year ago and signed a three word sentance to me when I had NEVER singed a sentance to him and I thought oh S***! Sure enough...Maybe it's because he has good fine motor. The theory I heard once is that if the fine motor involved in doing a sign well is supposed to be harder than just saying it and most kids with DS have trouble where they actively avoid fine motor activities. I don't konw if it's because he has never been tactily defensive or what, but he has not had too rough of a time with fine motor (maybe a 10% delay or whatnot) so they think the signing is easier for him so he gravitated towards that. Could be. He is also actively avoiding walking, yet excells and loves cognitive and social activities (didn't even show a delay last report) so he has his schedule in his head and what he likes and does not and that's pretty obvious!
We did have an OT who did alternative treatments on him (why not?) and HER theory is that he (as well as a lot of other kids with DS, autism and various delays particularly in speech) is an "indigo child" born on a higer spitirual plane and he sees no need to talk righ tnow because it is meaningless in his world because it's of a totally different level. Hmmm...I don't know if that's quite right, but it's definately a different spin to think about LOL!
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Post by Kristen on Feb 2, 2005 12:49:18 GMT -5
Jessie -t hat is reduculous! Who cares if signing cuts down on the number of people who understand him? If his speech isn't going to get any better (according to her then it INCREASES the number of people who can understand him so why not? UGH! Thank you for this thread. We are currently on a signing strike here. Carter did the opposite - once he leanred sign language, he gave up words Nice one. We tried, but everyone is different. He was saying 15ish words at 18 months and now at 2 1/2 nope. Picks up signs in only a few demonstrations and integrates them into his sign sentances NO PROBLEM, but won't say it anymore. When he gets a little closer to school we are going to teach him a few more to round out what he has to express basic needs (we know what he wants, but no one else does, you know?), but it's at the rediculous point here.
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Post by Kristen on Feb 2, 2005 13:25:37 GMT -5
That is just wonderful! YAY FOR YOU!
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Post by Kristen on May 17, 2005 20:47:52 GMT -5
You were trying to do what was best! If we could all see into our crystal ball it owuld be easier, but instead we are left doing the best we can. You did nothing wrong! You did the best you could and that is a noble ting!
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Post by Kristen on Jan 29, 2005 22:43:23 GMT -5
I think it's at growthcharts.com Anyway, *I* think she sounds just perfect if you ask me!
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Post by Kristen on Feb 2, 2005 13:23:21 GMT -5
Don't feel bad! None of us said oh boy, I'm so glad my child gets to be dsiabled and have a harder time with life! Please! We ALL want what is best for them! Our kiddos just took a different journey than yours - neither is better or worse, just different and holds it's own challenges. I know at least I was mostly petrified beyond anythign that his life was going to be sad, lonely and incomplete somehow. I was afraid of the unknown and have a tendency to worry about things that wouldn't even be an issue for 10 years if ever! I think I just went the other way when I was pregnant with Sydney because it was no longer unknown and it didn't scare me anymore. My husband mentoned it to me once as if she has it, then that is just what we were meant to do. If she doesn't, we'll have to figure out what to do with a kid like her He broke down after she was born and we found out she was okay (talk about guilt) but in talking to him it wasn't becasue he was worried about DS, but because he knew we were really lucky that Carter was healthy and he was pretty worried about the health issues that could go with it and he was scared for her if she was sick. Does that make sense? Again, we only want the best life for our kids - even if we can't quite put a definition on "best"
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Post by Kristen on Jan 29, 2005 22:42:10 GMT -5
AFP's...boy, what a waste IMO. I didn't even have one with my daughter because the one with my son, born with DS, my risk went from 1 in 1200 for my age to 1 in 2100 according to the AFP - HAHAHAHA!!!! What a joke! They are not very good EITHER way!
As an aside, my kids are 15 months apart, which means Carter (DS) was about 10 months old when the subject of AFP/amnio came up with my doctor. People here will tell you what a wreck I was after Carter was born, but by the time I was pregnant with Syd, I can honestly say I did not care one way or the other. I had no prenatal testing for abnormalities and found myself reassuring my doctor it was okay because I think on delivery day HE was more nervous than I was! Life does change you.
Best luck on a happy and healthy baby!
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Post by Kristen on May 17, 2005 20:48:58 GMT -5
I am in that exct same boat - our kiddos turn 3 within days of each other!
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Post by Kristen on Jan 24, 2005 13:12:29 GMT -5
Piping up from the peanut gallery to say if they were going to do something like that, I would think a more appropriate thing would be to name the alcove after her daughter.
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Post by Kristen on Jan 24, 2005 13:22:46 GMT -5
Well, time to break it to you - Emily is just advanced for her age! I have a picture of Carter in the NICU very, very young in my lap with his head turned toward me looking straight up at me. The nurses used to tell me how he would be laying there tracking them all over with his little dark eyes and they would feel staring and look around and there he was LOL! Totally believable and totally wonderful! It is truly remarkable she is sharing her smiles already!
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Post by Kristen on Jan 24, 2005 13:25:15 GMT -5
I just love that smiling face! We just got Carter a reverse walker out of sheer frustration and he is a whiz at it, too. Are your walls beat up yet?
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Post by Kristen on May 17, 2005 20:57:01 GMT -5
We do the time out chair. 1 minute a year. I told him he better shape up soon becuse he's almost 3 so that adds a minute LOL! If he is in his highchair he gets turned around for the same amount of time. I start with a warning and correction like picking up a toy or what not when applicable then the next time is time out. He is at the point where I give the warnignand say next time is time out and he looks all concerned and shakes his head noooo. Heck, I have given time outs in dressing rooms at the mall in a pinch LOL! Any old port in a storm.
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Post by Kristen on May 18, 2005 9:31:21 GMT -5
Honestly, that is one of the things I am considering hardest when the issue of inclusion vs. self contained classroom comes up. Kids are immitators AND they live up to your expectations of them in a lot of ways (not all, but a lot). If this woman thinks she can't do more and treates her as such on purpose or not such as the infamous asking the child to do something and if they don't immediately react the teacher does it for them/cues them more than necessary, that is EXACTLY what they will live up to in that situation.
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