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Post by dannysmom on Aug 24, 2005 20:01:33 GMT -5
Thanks everyone for the feedback. Consensus shows that if I can get away without giving him one..then that would be best. I am going to hold off on introducing one. He is already 2 1/2 months so he is fine without it. A little cranky today because he had 3 immunizations yesterday. As long as he can get to his fingers...he seems to be satisified.
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Post by dannysmom on Aug 23, 2005 16:13:53 GMT -5
Hi, I was wondering if you all could share your experience concerning pacificer use. My daughter never used one. My son Daniel with Ds is 2 months. Prior to surgery, I was afraid to offer it because he needed all his energy to drink his bottles. Now that surgery is over and he is stronger, I am considering giving him one because he sucks alot on his fingers. He makes quite a bit of noise and it is actually quite amusing. Everything is quiet around the house and then out of the blue, you can hear him sucking like crazy!! I am hesitant because a friend of mine has a daughter that is 2, and is totally addicted to her pacificer. When she was small, if it fell out while she was sleeping she would scream and scream until you put it back in. She is now 2 and uses it all the time still.
I know some kids just NEED that sucking. If my son is one of those kids..I want to give him what he needs. He has a pretty calm temperment, although he does get a little cranky and that is when he starts sucking on his fingers.
I am unsure since my daughter never had one. What are your thoughts everyone?
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Post by dannysmom on Aug 23, 2005 16:54:48 GMT -5
There is nothing better than capturing moments by surprise!! Poor bear, just thought he was having some tea...intead he got in trouble.
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Post by dannysmom on Aug 23, 2005 16:51:05 GMT -5
What a wonderful time in "both" of your lives. I know the excitment she must be feeling taking such big steps on her own. And for you, what an amazing feeling to see her achieve her independence. Good luck to all of you!! I look forward to hearing of her adventures!!
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Post by dannysmom on Aug 20, 2005 18:55:42 GMT -5
Chris,
I have read alot of posting and they referenced signing. Is signing used in the interim until they speak or instead of speaking? I noticed from your signature that your kids are born pretty close together. In your experience, is Sarah far behind where Alyssa was at her age?
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Post by dannysmom on Aug 20, 2005 18:30:19 GMT -5
Hi, I have a question for all of you more experienced moms out there. Why is it that children with ds typically talk later than most? I am still educating myself on ds (my son is only 2 months). I can understand the physical stuff like crawling and walking being delayed to low muscle tone, but what is it about speech that makes it delayed?
Maybe there is not an answer but I was just wondering about your experience, what you think delays it.
I live in RI and our early intervention program sounds wonderful. Due to his heart surgery we haven't yet begun any actual therapies yet so I am hoping alot of my questions will be answered through the EI process. But I am one that needs to know everything she can...so I figured all the moms out there have lots of experience. Thanks!!!!!
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Post by dannysmom on Aug 20, 2005 19:10:01 GMT -5
I don't know where to begin.........When my little boy was born 2 months ago I had no idea he was going to have ds and av canal defect. I had all prenatal tests and they showed nothing. When they told me in the recovery room (I had a c section) about my little boy....I thought the end of the world must be coming. I didn't think I would ever have the strength to face ds and open heart surgery.
Now that I have had time to breath, educate myself (mainly through unomas) my world has once again begun to return to normal. Surgery was a success, my boy is doing fantastic, I couldn't feel more blessed right now.
All of the support I received prior to surgery allowed me to make it through that ordeal. I even had the opportunity to help someone else who is going through surgery now. Can you believe that? I was able to contribute and help someone and it felt wonderful to do so.
I have learned through this site that life goes on and it is even going to be happy!! All of your children are growing, learning, achieving and living their lives to the fullest.
I am only beginning my journey with my son, but I have learned to have hope, dreams and excitment for the future with him as well as my daughter. You all have shown me that, and I am grateful to you all.
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Post by dannysmom on Aug 20, 2005 21:39:26 GMT -5
Patty,
What an amazing gift you have of writing. I went back and read everything that you posted in the last 5 days and by the time I was done....I needed a tissue. Your truly gifted and I will surely look for your writings each time you post. I have a 2 month old son and all of this is new to me as I didn't know about ds until his birth. He is doing wonderful, but I still need encouragement each day.
I am really looking forward to your writings. Thank you.
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Post by dannysmom on Aug 18, 2005 23:04:12 GMT -5
My thoughts and prayers are with you. My tough month is October. My mother in law passed away on Oct 4th and my husband got laid off on Oct 5th (different years). I try each year to do something special around that time to make those days more positive. Last year, I arranged to have our wedding vows renewed for our 10th anniversary. I know my mother in law would have been so happy we have been married so long.
I hope you are feeling better soon.
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Post by dannysmom on Aug 18, 2005 10:37:54 GMT -5
I hope he has the most wonderful day!! How exciting!! Please send pics and remember to always have extra batteries!!!!
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Post by dannysmom on Aug 16, 2005 19:20:34 GMT -5
I am reading the book For the Love of Matthew by Janice Houska. It is a very inspiring story about her son Matthew and growing up with ds. There is a quote in it from Winston Churchill that says:
It is a mistake to look too far ahead. Only one link in the chain of destiny can be handled at a time.
That quote really stuck with me because I have to make a conscious effort to live more in the moment, rather than looking so far ahead. I find I worry about my son's potential future health problems instead of being grateful that his surgery went so well. I worry about his future development even though he is right on target now. I wanted to share the quote for anyone out there who feels like I do. I am trying to enjoy each day as a gift rather than worrying about what tomorrow may bring.
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Post by dannysmom on Aug 16, 2005 18:17:44 GMT -5
Hi, I know alot of women who feel like you do. I have read the postings and it seems like you got alot of good advice.
One thing that I kind of disagree with is the phrase "man thing". Men are responsible for their actions just like we are. Being withdrawn or lack of initiative with the kids isn't a "guy" thing. It's a "person" thing. I would have to say if otherwise he is a great guy and before your son with ds was born he was different, then in my opinion it is his defense mechanism kicking in because of his fear. There have been many times I didn't WANT to talk to doctors for fear of what they might tell me about my child, however, I had to do it. I had to face it. I know we all share in that fear that something could happen to our kids but it is our responsibility to put our fears aside and take care of our kids as best as we can. That means talking to doctors, taking them to appointments, actively participating in their upbringing as difficult at times as those things are. We all have strengths in different areas. Things should be in balance. What works for one family doesn't necessarily work for another.
If you feel your current situtation isn't working for you, you owe it to yourself, your husband and children to find a better balance. Good luck, we're rooting for you.
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Post by dannysmom on Jan 26, 2007 11:08:17 GMT -5
OMG that is so funny. I thought your little guy was older than mine!! I never thought to look at the date the thread was started!! I just responded to it. LOL!! My son was 8 weeks old when this was started!!
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Post by dannysmom on Jan 24, 2007 18:12:28 GMT -5
Trisha, I didn't realize our boys were so close in age...my Daniel is 19 months. I'm not sure if I've posted this before, but this is what we used to get Daniel on the straw. I'll tell you, it took many attempts, but once he figured it out, it wasn't long before we could get rid of the bottle completely. I like it because it's the same concept of the juice box (you can squeeze it to make the juice come up) but you can put inside whatever you want. It also sealed shut so I didn't have to worry about it spiling. Good luck
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Post by dannysmom on Aug 10, 2005 22:01:45 GMT -5
Hello everyone, I wanted to post a quick note to let everyone know that my son Daniel's av canal surgery went fantastic. We just arrived home for Boston Children's Hospital this afternoon. I am so relieved and overjoyed. I received so many notes of support from everyone here, I couldn't wait to share our good news. I have noticed some new families have joined. If I can be of any help to anyone who is awaiting surgery, please don't hesitate to ask.
Thank you again, I'm glad to be back!
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