|
Post by CC on Jul 30, 2008 20:05:13 GMT -5
Blood tests have come back and NO Thyroid Problems so that is good ;D Odd thing that showed up which would have nothing to due with his heart issues was his Uric Acid came back high Was 8.7 and the range should be between 3.1 - 7.0. Not sure what is up with that but we will recheck it in 4 months the Ped suggested. Spoke with the Neurologist and she was going to contact the Heart Doc, which she did but I missed her call today so will talk with her tomorrow. She may ween him off the meds not sure yet as she really does not think the problem is from the meds but rather from when they corrected his Tachycardia (sp?). Even the Ped feels thats why he now has the Bradycardia (sp?). We shall find out soon I guess. But at this point Chris leaves for his sleep over camp in a week and a few days and none of us are sure it would be a good time to mess with his meds, KWIM I will find out tomorrow for sure what the 2 docs have decided. What I do know for sure is that each and every doc we have for Christopher care tons about him and I am very thankful for that. CC ~
|
|
|
Post by CC on Jul 30, 2008 19:50:21 GMT -5
FALSE ~ actually Chris is very tired from his long days at camp and just goes right to bed on his own ;D
TPBM ~ wishes summer would slow down a bit
|
|
|
Post by CC on Jul 30, 2008 19:43:55 GMT -5
How ADORABLE is that ;D Thanks for sharing, I have passed it on CC ~
|
|
|
Post by CC on Jul 30, 2008 19:39:56 GMT -5
WELCOME BACK ;DYou have been missed here at UNO, Glad to see you back posting again CC ~
|
|
|
Post by CC on Jul 30, 2008 19:35:44 GMT -5
and HUGS to you Mom, this is a very exciting time CC ~
|
|
|
Post by CC on Jul 27, 2008 22:52:54 GMT -5
K, I just have to say OMG, I just LOVEthe photos you posted ;D Your son is just so ADORABLE and your daughter is just BEAUTIFUL CC ~
|
|
|
Post by CC on Jul 27, 2008 22:48:42 GMT -5
You got it ALL will be crossed for you and I bet Laura does GREAT ;D PLEASE PLEASE post up as soon as you can how it all goes, Colin and I are thinking of trying that camp too. Chris rides a very cool bike BUT Oh how we would love for him to ride a two wheeler ;D I am sure he could with the right person to show him. Can't wait to hear how it all goes for you guys CC ~
|
|
|
Post by CC on Jul 27, 2008 16:56:47 GMT -5
Hey girl how you feeling?? Better I hope CC ~
|
|
|
Post by CC on Jul 27, 2008 16:42:40 GMT -5
OMG Brook is just ADORABLESoon you will be running, be ready Mom CC ~
|
|
|
Post by CC on Jul 27, 2008 16:38:26 GMT -5
"Dani said, I'm going to kick you in the butt" Hmmm sorry Kim but ROFLOLOL how cute is that and hey its 8 words in a complete sentence Glad to hear you are dating girl, hope you enjoy your time out, its well deserved CC~
|
|
|
Post by CC on Jul 27, 2008 16:34:13 GMT -5
Very Cool to read that, THANKS for sharing ;D Wishing Tracey GREAT Success on her new venture CC ~
|
|
|
Post by CC on Jul 27, 2008 16:29:16 GMT -5
THANKS as always gals. I know a Pace Maker is not the end of the world, I mean lots of older people use them BUT Man oh Man Colin and I are just hoping that it doesn't come to that, he is only 15 and just deserves a break in my opinion, KWIM BUT if it is mandatory YES we will get it for him. I have decided even thou we have an appointment with his Neurologist on Aug. 5th, I am going to call her and see. I actually feel bad giving him the meds not knowing if that is part of the problem Hopefully I can reach her tomorrow by phone. Anywho I appreciate you guys listening to my worries CC ~
|
|
|
Post by CC on Jul 25, 2008 16:44:52 GMT -5
His doc has been on vacation since Chris wore the heart monitor. Just talked with him today.
Chris now has Bradycardia aka slow heart rate. Geez first he has Tachycardia aka rapid heart. Anywho his rate would drop low at times, to around 35 to 37. What was more concerning to him is that the print out or what ever he was looking at shows his heart not going for 3 and 1/2 seconds at times during the 24 hour test. He is talking a pace maker BUT said he wants to look into a few things first, such as talk to his colleagues (sp?) at Columbia, he wants me to get Christopher's Thyroid tested pronto, just to make sure its not that and I need to talk to the Doc. that is handling his OCD meds. He wants to cover all the bases first before doing the pace maker.
Then in August he wants Chris to wear the heart monitor again for 24 hours to see what is what.
Colin and I told the Doc we would prefer not to due the pace maker unless absolutely necessary. He said we are OK now but if the next test or any test there after shows his heart resting for over 4 to 5 seconds it will be mandatory he get one.
So thats what I know now and will have the Thyroid tested this week and luckily we go back to the Neurologist August 5th to discuss if the med he is on could be doing this. Heart Doc looked up the med and said it could be a symptom of the med but very very rare.
I know others have it worse but man oh man Chris just never seems to get a break with things sometimes.
CC ~
|
|
|
Post by CC on Jul 25, 2008 16:29:21 GMT -5
Very Sad day indeed I have watched him lots on shows and such and have read his book and he truly was and will continue to be an inspiration to many. Blessings going out to his wife and his little children. CC ~
|
|
|
Post by CC on Jul 24, 2008 20:16:20 GMT -5
|
|